I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 27, 2024, 10:47:15 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  Introduce Yourself
| | |-+  Introducing myself		 0 Members and 3 Guests are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Introducing myself  (Read 2699 times)
Larry Robinson
Newbie
*
Offline Offline

Posts: 4
« on: May 14, 2020, 11:30:24 AM »
I'm Larry, a 62 year old who's been on nocturnal PD (AMIA cycler) for about 2½ years. I'm doing 4 3-liter cycles of yellows (1.5%) per night. It's going OK, except for alarms more often than not. I've been on the waitlist for a transplant for about 4 years now, but I'm not getting my hopes up.

Cheers,
Larry
Logged
cassandra
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #1 on: May 15, 2020, 04:47:11 PM »
Welcome to the site Larry


   :welcomesign;




Keep taking care, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2401
« Reply #2 on: May 19, 2020, 11:20:37 PM »
 :welcomesign; Welcome to the site, Larry!  :clap;  I applaud you for doing your dialysis at home. Keep it up!
Logged
Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Hereware
Full Member
***
Offline Offline

Posts: 106
« Reply #3 on: September 25, 2020, 01:38:22 AM »
Hi there Larry. How have you been?
Logged
kristina
Member for Life
******
Offline Offline

Posts: 5530
« Reply #4 on: September 25, 2020, 04:01:14 AM »
Hello Larry,

Welcome and good luck for your progress on the waiting-list. It should not take too long anymore since you have already been waiting for 4 years, but there again, it depends on your medical history and where you are. Are you in America, Canada or here in England?

Best wishes from Kristina. :grouphug;
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
iolaire
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2022
« Reply #5 on: September 25, 2020, 06:28:41 AM »
Welcome to the group.  You probably already found the wealth of experiences we all share?
Logged
Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
frugallyzing
Newbie
*
Offline Offline

Posts: 40
« Reply #6 on: November 24, 2020, 12:59:03 PM »
Hey Larry! Welcome to the group. I hope you are well. I wish you the best, and I'll see you around!
Logged
Blodwyn
Newbie
*
Offline Offline

Gender: Male
Posts: 1
« Reply #7 on: January 02, 2021, 02:07:41 PM »
75 years of age; routine physical found excess protein in urine at approx. age 55; kidney biopsy at approx. age 60 diagnosed nephrotic neuropathy; admitted to transplant waiting list
November 2017 when GFR down to 15; GFR has been hovering at 9 and 10 for past 6 months; had fistula established 6months ago; matured very slowly but just now deemed useable; am about to start in clinic hemo.
Don't know much about being on dialysis other than that there are in clinic hemo,  home hemo and home peritoneal.
Just read that peritoneal apparently involves ingesting limited amounts of fluids. Hoping to learn more about that and whether that also applies to hemo.
Logged
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #8 on: January 02, 2021, 02:57:57 PM »
Quote from: Blodwyn on January 02, 2021, 02:07:41 PM
75 years of age; routine physical found excess protein in urine at approx. age 55; kidney biopsy at approx. age 60 diagnosed nephrotic neuropathy; admitted to transplant waiting list
November 2017 when GFR down to 15; GFR has been hovering at 9 and 10 for past 6 months; had fistula established 6months ago; matured very slowly but just now deemed useable; am about to start in clinic hemo.
Don't know much about being on dialysis other than that there are in clinic hemo,  home hemo and home peritoneal.
Just read that peritoneal apparently involves ingesting limited amounts of fluids. Hoping to learn more about that and whether that also applies to hemo.

Hello, Blodwyn.  Quite a few of us here have experienced lengthy and gradual declines in kidney function, so your story is not at all unusual.

Kidney School is one of the best, if not THE best, resources for education about kidneys and treatments for renal failure. 

https://kidneyschool.org/

Just click on "Learning Modules", and you will have really good information on hand!
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Simon Dog
Administrator/Owner
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3460
« Reply #9 on: January 03, 2021, 03:07:59 PM »
Peritoneal involves pouring in large quantities of fluid into your peritoneum (hence the term) via a surgically planted cather and draining the fluid after it dwells for a while.  You are still on a fluid restricted diet, though less than hemo, and in particular, less than in-center hemo (if you compare to home protocols more than 3x/wk).
Logged
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!