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Author Topic: How old were you?  (Read 3971 times)
Athena
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« on: January 21, 2020, 05:53:43 AM »

How old were you when you received your kidney transplant?
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cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: January 21, 2020, 07:05:56 AM »

Hi Athena, I was 20
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Athena
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« Reply #2 on: January 21, 2020, 07:17:00 AM »

Hi Athena, I was 20

Thanks Cassandra. Do you know what the upper age limit may be to receive a kidney transplant?
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MooseMom
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« Reply #3 on: January 21, 2020, 07:31:31 AM »

I was 55.

I am not aware of an upper age limit, but each center may have its own rules or guidelines.

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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #4 on: January 21, 2020, 10:41:02 AM »


Do you know what the upper age limit may be to receive a kidney transplant?

In Britain it is 60, but they take the patient's physical health into consideration and can move that a bit up or down, depending.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
SooMK
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« Reply #5 on: January 21, 2020, 10:42:26 AM »

I was 65, as was my donor. No one mentioned an age limit at my center.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Simon Dog
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« Reply #6 on: January 21, 2020, 07:30:14 PM »

60
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Naynay99
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« Reply #7 on: January 22, 2020, 08:46:01 PM »

Hey. I was 13.
But my friends Dad needs a kidney Tx and she was gonna donate but then he got prostate cancer. They said he needs at least 3 years w clean scans, which brings him right under their age cutoff at age 80.  Oh, this is for a live donor, he was too old to go on their deceased tx list.  I would imagine each center has its own rules for age. 
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Kathymac2
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« Reply #8 on: January 23, 2020, 06:09:31 AM »

I was 69. I was seven years on the transplant list which seems to be the norm here in Southern California. My donor was mid sixties.

At my last clinic visit pre-transplant, the doctor timed me walking up and down the hallway and administered memory and written cognitive tests. I got the impression that this type of testing would be done each year at my annual pre-transplant visit to ensure I was not too frail or too "old" to withstand surgery and to have a good outcome.
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iolaire
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« Reply #9 on: January 23, 2020, 07:11:26 AM »

43
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Michael Murphy
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« Reply #10 on: January 23, 2020, 12:42:05 PM »

The guy who sat next to me for my first two years was 75 at the time of his transplant the donor was a relative.
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Athena
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« Reply #11 on: February 05, 2020, 09:50:12 AM »

Many thanks for the replies everyone. It seems we have a problem in Australia & New Zealand. The maximum age they'd consider someone for a transplant is 50 years. What a bummer!
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MooseMom
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« Reply #12 on: February 05, 2020, 12:28:33 PM »

Many thanks for the replies everyone. It seems we have a problem in Australia & New Zealand. The maximum age they'd consider someone for a transplant is 50 years. What a bummer!

This just seems so unfair and discriminatory.

Does this "rule" apply to people over 50 who may have a living donor lined up? 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Athena
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« Reply #13 on: February 07, 2020, 10:54:45 AM »

Many thanks for the replies everyone. It seems we have a problem in Australia & New Zealand. The maximum age they'd consider someone for a transplant is 50 years. What a bummer!

This just seems so unfair and discriminatory.

Does this "rule" apply to people over 50 who may have a living donor lined up?

Moosemum, I'm not sure but I wouldn't be surprised if age restrictions are lifted if there is a living donor.
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UkrainianTracksuit
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« Reply #14 on: February 07, 2020, 05:02:34 PM »

At the tx hospital for me, 55 is the cut off for a kidney/pancreas transplant, however, they have not stated one for single kidney tx. For instance, I know of senior citizens who have received a kidney tx from the same center.
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RichardMEL
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« Reply #15 on: February 07, 2020, 06:06:03 PM »

Many thanks for the replies everyone. It seems we have a problem in Australia & New Zealand. The maximum age they'd consider someone for a transplant is 50 years. What a bummer!

Athena, Please provide a source for this blanket statement.

I know of plenty of people over 50 who have received cadaver transplants  in Australia and even a couple of kiwis.

You may have anecdotal/personal experience which may or may not be related to a specific circumstance but there is not a age limit of 50 in these countries as far as I am aware.

If you can provide an appropriate source linke, ie from the Government or similar, to support your claim then I am happy to be corrected.

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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
rookiegirl
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« Reply #16 on: February 11, 2020, 05:01:33 PM »

I was 38 years old and celebrating my 11th year post transplant in March 2020
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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