I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
December 14, 2019, 05:53:17 AM

Login with username, password and session length
Search:     Advanced search
529344 Posts in 33304 Topics by 12355 Members
Latest Member: Di Girl
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Transplant Discussion (Moderator: KarenInWA)
| | |-+  My Husband finally got his transplant!
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: My Husband finally got his transplant!  (Read 287 times)
Bambino_Bear
Full Member
***
Offline Offline

Gender: Female
Posts: 284


WWW
« on: November 27, 2019, 09:48:49 PM »

Hi all.  I haven't been on in awhile.  We are still at Methodist Transplant Hospital in San Antonio Texas.  Justin received a deceased donor kidney on Friday.  It looks like we may be discharged tomorrow. His kidney is a little slow.  It makes tons of urine but the creatinine is still high.  I am so anxious, but the docs seem confident it will decrease rapidly once the kidney wakes all the way up. 

I am still trying to figure everything out.  He has private insurance and the $425 premium was paid by the AKF.  I know they stop paying post transplant so I am trying to figure out how to keep paying this.  We are not on Medicaid yet even though he is on ESRD disability.  I am so stressed out. 

I am so grateful for the kidney, but totally scared and overwhelmed too.
Logged

I am a caregiver to my wonderful husband,  He is 36 and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
~Life is what you make it~
Simon Dog
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3218


« Reply #1 on: November 28, 2019, 09:25:03 AM »

He has private insurance and the $425 premium was paid by the AKF.  I know they stop paying post transplant so I am trying to figure out how to keep paying this.  We are not on Medicaid yet even though he is on ESRD disability.  I am so stressed out. 
Great news one the kidney, and they do wake up.

The AKF discontinues because it is supported by the dialysis industry since the amount to fund the AKF premium payments increases the reimbursement rate for D treatments over Medicaid or other public sector insurance.  This is part of the controversy over the new CA law prohibiting such transfer payments from dialysis firms to insurance premium payments.

And, you would transition to Medicare if on D for more than 30 months, not Medicaid.
Logged
Paul
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1029


That's another fine TARDIS you got me into Stanley

« Reply #2 on: November 28, 2019, 10:45:07 AM »


Congratulations. :bandance;  :cheer:  :2thumbsup;  :yahoo;  :clap;  :beer1;

Logged

Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
iolaire
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1739


« Reply #3 on: November 28, 2019, 05:59:34 PM »

Thatís great news. My kidney was slow to get going as it took a few weeks to get into normal range. I hope his settles down similarly or faster.
Logged

Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Bambino_Bear
Full Member
***
Offline Offline

Gender: Female
Posts: 284


WWW
« Reply #4 on: November 28, 2019, 07:59:13 PM »

Thanks guys.  Before your kidney woke up did you feel extra fatigued?  My husband is so exhausted.  I am assuming it is the high creatinine.  I am worried about him, but I guess the transplant hospital would not have released him if he was in danger.

I am just a nervous wife I guess.  He is laying next to me snoring away.
Logged

I am a caregiver to my wonderful husband,  He is 36 and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
~Life is what you make it~
iolaire
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1739


« Reply #5 on: November 29, 2019, 09:34:25 AM »

I was in the hospital for a week and still napping a good bit when I got home. They stressed getting up and around so I started trying the do small walks with my wife and slowly started small walks outside. I donít recall how long it felt for me to get energy but I would not worry. The week in the hospital is very draining, plus the major surgery.
Logged

Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Simon Dog
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3218


« Reply #6 on: November 29, 2019, 12:59:15 PM »

My biggest inconvenience was the surgical drain that I kept for a few weeks.  Surgery Fri-Sat midnight-5AM, discharge Tuesday AM, plus discharge from the drain for another 2-3 weeks.  The biggest inconvenience was bending over to clean up shit (my dig had diarrhea at the time and the wife was away at a convention), but my brother helped out a lot and the Chinese grandmother across the street kept bring me Chinese Grandmother type food, and her son helped out with some stuff.  I remember the surgeon was pleased when I did 5 laps around the unit in the hospital the day after surgery.    Soreness (not really rising to the level of pain) lasted a couple weeks.
Logged
SooMK
Full Member
***
Offline Offline

Gender: Female
Posts: 484


« Reply #7 on: December 02, 2019, 09:08:15 AM »

Congrats to you both! Hope his kidney wakes up and gets busy soon. I always try to trust the clinic and the docs otherwise the depth of the worry pit are infinite.
Logged

SooMK
Diagnosed FJHN/UKD 2009
Transplant April 2014
Bambino_Bear
Full Member
***
Offline Offline

Gender: Female
Posts: 284


WWW
« Reply #8 on: December 02, 2019, 09:52:28 AM »

 :flower;

Thank you all.
Logged

I am a caregiver to my wonderful husband,  He is 36 and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
~Life is what you make it~
PrimeTimer
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2217


« Reply #9 on: December 03, 2019, 05:08:52 PM »

Sounds like Santa came early for you guys, this is great news!  :bestwishes; :santahat; :christmastree; :snowman; :rudolph; :wine; ;musicalnote;
Logged

Husband has ESRD with Type I Diabetes -Insulin Dependent.
I was his carepartner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
cassandra
Global Moderator
Elite Member
*****
Online Online

Gender: Female
Posts: 4833


When all else fails run in circles, shout loudly

« Reply #10 on: December 04, 2019, 05:05:49 AM »

Congrats Bambino Bear and hubby!!  :cheer:
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
okarol
Member for Life
******
Offline Offline

Gender: Female
Posts: 100878


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #11 on: December 09, 2019, 12:44:44 AM »

So happy for you all. How is he doing?  :waving;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.15 | SMF © 2017, Simple Machines Valid XHTML 1.0! Valid CSS!