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| | |-+  Must find a way to avoid a disaster!
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Author Topic: Must find a way to avoid a disaster!  (Read 104 times)
Athena
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« on: September 04, 2019, 07:25:49 AM »

I am back into researching what may be able to help slow down or even halt progression of CKD (apart from the basic conventional care of controlling BP, BG, hydration etc)! If anyone can please throw my way anything that they have heard or have experienced as being beneficial, I would greatly appreciate it.

I'm now looking into the supplement pycnogenol (french maritime pine bark) & curcumin. I'm sure there are many other natural anti-inflammatories & anti-fibrotic agents.

Chinese herbal medicine also seems to be a good contender for consideration.

There are many risks & uncertainties with all of this, but not doing anything is also guaranteed to lead to end-stage kidney failure. I still can't believe they haven't found a way to help save people from a life on dialysis & transplantation!
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kristina
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« Reply #1 on: September 05, 2019, 02:07:45 AM »

Hello Athena,
I am very sorry that you find yourself in such a desperate situation and I just feel the need to say that all you can do is to continue with a healthy & mainly vegetarian diet ...  and please continue to be careful about your potassium-intake and most importantly : please speak with your doctor/nephrologist about it a.s.a.p. and please also find out from him/her, how much liquid your kidneys can “work through” a day right now.
Perhaps your doctor/nephrologist could arrange for you to see the dietician ? Please ask your doctor about it, you just could ease your mind and make sure with the dietician that you are eating the right food  ?

But please be very careful about all these expensive “supplements” !!! Many of them are just lots of talk & promises but nothing else and the result is that the producers of these “all promising supplements” make lots of money on your hopes.

Nevertheless, your doctor could take a blood-test from you to find out whether or not you NEED anything i.e. vitamins etc. and if the blood-test is alright, just continue what you have been doing so successfully all these years with your intake of food and drink.
I wish you good luck and please see your doctor and your dietician a.s.a.p. and, of course, the Internet is a great help, but whatever you may find on the Internet, please speak with your doctor about it. Your fragile kidneys need all the protection they can get right now.
Good luck wishes from Kristina. :grouphug;
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Athena
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« Reply #2 on: September 05, 2019, 08:53:48 AM »

Thank you Kristina for your reply. I will have to very carefully proceed with any herbs or supplements through my Neph (& always with frequent blood tests along the way to monitor the effect these supplements may have on me).

I hope life has been treating you well Kristina. It's so nice to hear from you.  :flower;
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