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Author Topic: Newbie frankieb  (Read 5618 times)
frankieb
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« on: April 30, 2007, 12:14:22 PM »
 Hello all, been reading some posts and thought it was time to introduce myself.  I was diagnosed w/ ESRD back in '82. Did hemo from 83-91 and transplanted since.  Kidney function right now is 23%, Dr. recommended me for a tx eval.  I have many questions concerning a second transplant that some member/s could address,  I hope I could also help as I had a transplant for 16 years and had many bumps along the way. Prednisone is NOT my favorite drug.  Peace,  FrankieB

 :beer1;



 
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FrankieB


ESRD DIAGNOSED 10/20/82                                                                                         
Dialysis- 12/20/83-5/18/91
Kidney transplant  5/18/91-7/18/07
Dialysis- 7/18/07- 9/24/07
Kidney transplant date 9/25/07 from my Hero, Donna
Thank You God for my SISTER,  Love you Don
Hawkeye
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« Reply #1 on: April 30, 2007, 12:25:11 PM »
Hello and  :welcomesign;
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It's not easy being green.
Lori1851
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This is me Lori , Dustin's mom
« Reply #2 on: April 30, 2007, 12:54:35 PM »
 :welcomesign; Frankie,
This is a good forum to belong to. My son is 21 and going through dialysis right now. Been through the transplant evaluation now waiting on a kidney.
Nice to meet you.
Lori Dustin's mom
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carolyn77531
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« Reply #3 on: April 30, 2007, 01:10:05 PM »
 :welcomesign;
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okarol
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« Reply #4 on: April 30, 2007, 04:43:16 PM »
 :waving; Hey Frankie,
I am sure there's lots we can learn from you, sounds like you have been through everything! I hope all goes well for you in the future.
Best wishes and welcome!
Karol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #5 on: April 30, 2007, 05:05:31 PM »
Hi Frankie and  :welcomesign;

Great to see you here !

Hope to see you around the forum or maybe even in the chatroom.

Have fun!

Tamara xxx ooo  :cuddle;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Joe Paul
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« Reply #6 on: April 30, 2007, 05:08:05 PM »
Welcome frankieb, good to have you aboard.
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goofynina
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« Reply #7 on: April 30, 2007, 05:24:20 PM »
Hey Frankie, Welcome to ihatedialysis.com.  So glad you found us, hopefully you can find the answers your looking for here.  Sorry to hear your transplant is failing but i must say, 16 years with it sure must've been a blessing, even with all those bumps along the way ;)  I do hope you look into having a second one done and you do not have to go on dialysis.  Please keep us posted.  Looking forward to hearing more from you...



Goofynina/Admin.
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....and i think to myself, what a wonderful world....

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Jill D.
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« Reply #8 on: April 30, 2007, 08:03:12 PM »
 :welcomesign;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
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« Reply #9 on: April 30, 2007, 09:01:11 PM »
 :welcomesign;   FrankieB, to the community.  Glad you joined us as I am sure you can be of assistance and support because of all you have been through.  Hope to hear more from you soon.
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kitkatz
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« Reply #10 on: April 30, 2007, 09:12:40 PM »
Welocme to the site. We are full of information here. It sounds like you will be a superb addition. It will take you awhile to read everything. Take your time.




kitkatz,moderator
« Last Edit: May 03, 2007, 09:19:30 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: May 01, 2007, 03:41:28 AM »
Welcome to our community!  Your name made me give a double take.  My family (Barker) is full of Franks.  My dad was Frank, my brother is Frank and assorted nephews are Frank.  So we have lots of FrankieB's!
You have to come to the right place to receive answers.  And even if you don't get specific answers, at least you know you will have lots of support, and a group of people who know EXACTLY what you are going through.  Keep posting, and let us know how you are doing.


Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
Rose From OZ
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« Reply #12 on: May 01, 2007, 05:03:09 AM »
Hi Frankieb Welcome!! My sister is on Dialysis but I have had a Kidney transplant for 10 years now! What bumbs along the way have you had? I have no choice but to stay on oredinsone went off it and had an episode of rejection!
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Laurie
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May 13, 2008
« Reply #13 on: May 01, 2007, 05:12:49 AM »
  :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
frankieb
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« Reply #14 on: May 01, 2007, 06:47:23 AM »
Thank you all for the warm welcome. I look foward contributing to this IHD community.   :grouphug; 
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FrankieB


ESRD DIAGNOSED 10/20/82                                                                                         
Dialysis- 12/20/83-5/18/91
Kidney transplant  5/18/91-7/18/07
Dialysis- 7/18/07- 9/24/07
Kidney transplant date 9/25/07 from my Hero, Donna
Thank You God for my SISTER,  Love you Don
angela515
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« Reply #15 on: May 01, 2007, 09:06:06 AM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Wattle
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« Reply #16 on: May 01, 2007, 05:43:22 PM »
 :welcomesign;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Rerun
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« Reply #17 on: May 01, 2007, 07:05:26 PM »
Hi Frankie.  Sounds like you had a good run with the transplant.  I hope and pray you can hang on to the 20%. 

Things are a LOT different than they were 15 years ago.  Dialysis is different too.  You were probably on the OLD Drake Willock machines that were LOUD.  Well, these are quiet and with the hi-flux dialyzers things are a "little" bit faster. 

I don't think it is as easy to get a transplant the second time especially since you had yours for so long.  There is a catch 22 with having a transplant for such a long time.  The good part is you had it for 16+ years.  The bad news is it has screwed up your antigins so you are going to be hard to match.  Other news is they can do things to help with this as you will read on this forum.

Welcome and I'm looking forward to your posts.
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nextnoel
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« Reply #18 on: May 02, 2007, 11:22:40 AM »
Welcome to the IHD Family, FrankieB!  :welcomesign;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
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« Reply #19 on: May 03, 2007, 06:01:24 AM »
Welcome Frankie to IHD.

Thank you for introducing yourself, it is the best way for us to get to know you better. Whatever your reason for joining our family here at IHD, I hope you find everything you need, but most importantly I want you to feel comfortable to ask questions and come back and post often.

Here are some links to help you out.

Site rules: http://ihatedialysis.com/forum/index.php?topic=540.0

Chat: http://ihatedialysis.com/forum/chat/flashchat.php

The best search engine for kidney related issues: http://www.kidneyoogle.com

Relationship advice: http://www.renalromance.com


Sluff, Administrator
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frankieb
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« Reply #20 on: May 07, 2007, 04:05:35 PM »
Hi Everyone

My name is Donna and I am Frankie's sister.  I am going to be tested next week to be a potential donor.  I have thought about this for many years and I am 100% sure I want to donate my kidney to my brother if it is a match. Is there anything anyone can tell me about the screening process?  I understand there is a psych evaluation too.  I would love to hear any stories, advise or suggestions.   thanks! :)
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FrankieB


ESRD DIAGNOSED 10/20/82                                                                                         
Dialysis- 12/20/83-5/18/91
Kidney transplant  5/18/91-7/18/07
Dialysis- 7/18/07- 9/24/07
Kidney transplant date 9/25/07 from my Hero, Donna
Thank You God for my SISTER,  Love you Don
Sluff
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« Reply #21 on: May 07, 2007, 04:48:50 PM »
Donna you deserve your own membership, and thread. Go ahead and join under your own member name.

Sluff/ Administrator
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kitkatz
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« Reply #22 on: May 08, 2007, 05:22:54 PM »
Welcome to our site. I hope you are successful in your quest to GIVE a kidney to someone you love.   There is a lot of discussion around transplants on the site.  Read everything.




kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
frankieb
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« Reply #23 on: May 08, 2007, 05:53:59 PM »
Quote from: Sluff on May 07, 2007, 04:48:50 PM
Donna you deserve your own membership, and thread. Go ahead and join under your own member name.

Sluff/ Administrator
I still cant log in under my name.....awaiting administrative acceptance....could you please tell me what else i need to do?
Donna
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FrankieB


ESRD DIAGNOSED 10/20/82                                                                                         
Dialysis- 12/20/83-5/18/91
Kidney transplant  5/18/91-7/18/07
Dialysis- 7/18/07- 9/24/07
Kidney transplant date 9/25/07 from my Hero, Donna
Thank You God for my SISTER,  Love you Don
Sluff
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« Reply #24 on: May 08, 2007, 05:57:52 PM »
Quote from: frankieb on May 08, 2007, 05:53:59 PM
Quote from: Sluff on May 07, 2007, 04:48:50 PM
Donna you deserve your own membership, and thread. Go ahead and join under your own member name.

Sluff/ Administrator
I still cant log in under my name.....awaiting administrative acceptance....could you please tell me what else i need to do?
Donna

Donna you need to re register under your new name. If you did it is not there and you need to do it again.

Thanks Sluff/ Admin
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