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Author Topic: No, Not ME, doc!  (Read 441 times)
PrimeTimer
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« on: March 26, 2019, 05:44:32 PM »

Well, the care-partner (that would be me) needed some care this week. I'm a big fat stupido. I not only waited too long to deal with a major asthma problem (again) but also have cellulitis. I think I had that patriotic look going on...red, white and blue. Had to use a wheelchair for the first time the other day. And I scared the crap out of my doctor. Boy, was he ever upset. Poor hubby has had to look out after me and HE'S the one with no working kidneys. Got a ways to go but not on my deathbed, in fact I can't sleep in my bed yet, I sleep sitting up in a chair but I am breathing. Thanks to a nebulizer, prednisone, shower stool, furosemide and Bactrim. And one very very good doctor with two very very good nurses. Gave them all a scare I guess.

I am going to have to make this up to my husband, he's been doing everything and all the chores around here and with no complaints. I have to use the nebulizer machine every 4-6 hours now no matter what but it keeps me breathing. Cellulitis is scary, if you read what all it can do to you. Not being able to breath is scarier. Probably the best advice I could give someone is to tell them that if they are at all "mobile" they should stay "mobile". Getting older is no excuse to slow down. Being lazy is even worse. Like that tv commercial says, "A body in motion tends to stay in motion". Well, I slowed down and that was the worst thing I could have done. A good rest is one thing but it went downhill quickly and I don't want to ever go thru this again. All you caregivers and care-partners out there, please take good care of yourself because if you don't you won't be of any good to anyone. Listen to your body and listen to your significant other. And your doctor! It's okay to get help.
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Husband has ESRD with Type I Diabetes -Insulin Dependent.
I was his carepartner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
Kathymac2
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« Reply #1 on: March 26, 2019, 07:25:49 PM »

Wow Prime Timer!  Being so focused on kidney problems, it's sometimes hard to remember there are a whole host of medical problems out there that can take you down in a hurry. 

Please take good care of yourself for both you and your hubby.  I wish you a speedy recovery.

Kathy
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Michael Murphy
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« Reply #2 on: March 26, 2019, 08:09:47 PM »

I thought I was suffering a bad asthma attack in October 2016, I treated it with a Xopex inhaler for 2 days and it wasnít getting better.  Went to urgent care and was told I was having a major heart attack with no other symptoms then canít breath.  After 3 operations and 2 weeks in every major hospital my life was saved. It turns out dialysis patients are prone to cardiac  problems. And any persistent breathing problems should be checked out, going in on the first day would have reduced the damage by a lot.  It is only a quick blood test to look for a cardiac problem. 
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MooseMom
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« Reply #3 on: March 26, 2019, 08:49:08 PM »

Oh, geez!  PT, get better soon, OK?

Oh, I'm going to drag out my soap box here...wait a minute...ugh, it's heavy...OK, here it is!  Ahem.  You don't have to make anything up to your hubby.  He can do chores.  It's not rocket science, it's chores.  I'm sure he is a very smart man and can operate a dust cloth.   :P  Having kidney failure is tough, but it doesn't render one completely helpless 24/7.  I'm sure he is happy to look after you, especially after all of the love and care you've shown him!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
UkrainianTracksuit
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« Reply #4 on: March 27, 2019, 02:40:05 AM »

Get well soon, PT!  :grouphug;

My mom has asthma that flares up from time to time. This last round with prednisone (50 mg) was brutal. When my mom used a nebulizer when I was a kid, she used to entertain me. Told me to grab a seat behind her and we would play fighter jet. All of that said, that's just a little window into your problem, and let me say, it's scary and I hope for a speedy recovery.

Cellulitis is BRUTAL. I had it when I had to go for IV treatments (needle poke in the skin, hello bacteria!) and it was AWFUL. You have my sympathy! Please take care of yourself and this is your time to be the patient. It may be a shorter term but now, you need all the love and support!
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kickingandscreaming
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« Reply #5 on: March 27, 2019, 05:27:18 AM »

PT, I can't speak of cellulitis (and hope I never can), but I sure can relate about not being able to breathe.  THE MOST SCARY THING IN THE WORLD!  Finally, my pulmonary doc put me on Singulair and Breo Ellipta and my Asthma is (knock on wood) controlled .  But there is always the threat of an upper-respiratory virus that could take me down.  And then there was that "little" incident called Potassium Toxicity when a taper course of Prednisone triggered my blood sugar (Type 2) and released a ton of Potassium (7.7) and set my heart aflutter in the ER.  So I empathize and hope that you are breathing freely very soon.   
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
cassandra
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When all else fails run in circles, shout loudly

« Reply #6 on: March 27, 2019, 10:47:36 AM »

Get well(better) soon PT


   :cuddle;


Lots of luck, strength, and air, Cas :flower;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #7 on: March 28, 2019, 01:54:47 PM »

Hope you feel better soon.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
PrimeTimer
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« Reply #8 on: March 28, 2019, 08:45:10 PM »

Thanks everyone for the well wishes. Had blood tests. Have to get an echocardiogram next. Just to rule some things out. I miss sleeping in a bed. Heck, I miss sleeping! Had weird nightmares about poisonous mice on the loose while hunched over the kitchen table last night with a couple of pillows. Intentionally. Cannot breath lying back yet. Lying down also hurts my legs right now because of the cellulitis. Like the doc suggests, from now on I am going to shave my legs using an electric shaver to lower the risk of cuts or breaking the skin from a razor blade and inviting bacteria in. Meanwhile, the chair in the living room is better than the kitchen table but I have to alternate to deal with body aches. I don't even mind the side effects of the Prednisone right now. So long as I can breath I will gladly satisfy the cravings and have some of that carrot cake that hubby brought home.
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Husband has ESRD with Type I Diabetes -Insulin Dependent.
I was his carepartner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
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