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Author Topic: I'm here to give everyone hope!  (Read 781 times)
podpeople
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« on: February 20, 2019, 07:51:23 AM »

Hello:
I have not been on here very much. My husband got kidney failure in October 2017 due to a urinary blockage from the prostate. This was a gradual thing and because he wasn't seeing a doctor he never knew he was blocked until it was too late . He ended up in the ER with GFR of 3 . He went on Dialysis until June 2018 when he started Periotoneal. He started out doing   3 bags of 2500 per day. In November( i think), his KT/V was around 5 . The doctor said he could do just 2 bags of 2000 per day. This month's KT/V came out to 3.92.
Today the Nephrologist told him that his clearance( don't know if it's the same as GFR) is 20 so she is taking him off Dialysis to see how he does. HOORAY!!  :cheer:
He will have blood work every 2 weeks to monitor him. This is great news. I just wanted everyone to know this and to know there is HOPE.
Good luck to everyone going through this.
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kickingandscreaming
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« Reply #1 on: February 20, 2019, 07:59:02 AM »

That's wonderful for your husband and you, but it probably shows that he had AKI (acute kidney injury) and not chronic ESRD.  One of the two can revert to "normal" and the other can't.


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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
podpeople
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« Reply #2 on: February 20, 2019, 09:40:28 AM »

Thanks. It might be that he had acute kidney injury but in September 2016 he was diagnosed with stage 4 kidney failure and we thought it was because of his high blood pressure. I don't know if this would be considered acute but I just wanted others who are going through this to get some hope. Not to mention that at the hospital the nephrologist told him he was going to be on dialysis for the rest of his life.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: February 20, 2019, 10:34:56 AM »

Thanx Podpeople congrats with your husbands recovery!!


    :cheer:   Love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
UkrainianTracksuit
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« Reply #4 on: February 20, 2019, 11:03:23 AM »

Wonderful news and I hope all the goodness continues for your husband!  :yahoo;

However, it is possible to have acute renal failure while in later stages (I experienced it at stage 4) and function to climb back up to a point where dialysis isn't needed "right now." After an infection, my function dropped from 20% all the way to single digits. I went on HD for a short time and my function recovered between 17 to 20 %. It wasn't ideal but it delayed reliance on HD for awhile. It was a wait-and-see process to see if the kidneys recovered.

It helps also that your husband was on PD, as you retain residual function a little longer. That must have helped his kidneys to bump up to where they are now.

Anyway, best of luck! Waiting for the results to "get off" dialysis can be nerve-wracking but when they come in and you're good (for awhile), it's a great feeling!
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LorinnPKD
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« Reply #5 on: February 20, 2019, 01:58:08 PM »

So happy to hear about your husband!

I hope you can take some time to travel & enjoy lots of things that were difficult while he was on hemo and pd.
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Rerun
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Going through life tied to a chair!

« Reply #6 on: February 20, 2019, 03:35:10 PM »

God bless him!   :welcomesign;
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Shaks24
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« Reply #7 on: February 21, 2019, 05:26:35 AM »

Wow! Great news. Even clearance numbers of 5 or 3.92 are excellent numbers. Most clinics have a goal of 1.7 - 2. I know at my clinic the goal is 2 for PD patients.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #8 on: February 21, 2019, 06:19:57 AM »

Great News.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
podpeople
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« Reply #9 on: February 24, 2019, 03:30:51 PM »

Thanks everyone! He's on a more restrictive diet now since he's not on Dialysis. Doctor said to eat less animal protein and be careful with potassium foods. I will keep everyone posted on his blood work.
God bless everyone. I know how tough this is.
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Charlie B53
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« Reply #10 on: February 25, 2019, 05:09:36 AM »


A Renal Diet reducing the work load on his kidneys will hopefully continue to save his function a long time.

His is so very fortunate to have this second chance to stay off of Dialysis longer.

Take advantage of it.  If you haven't already, Google Renal Diet and check both the Fresenius and DaVita websites as both have whole sections on diets with many cookbooks of recipes of renal friendly foods.
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