hello from California

maddawg

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« on: November 11, 2018, 11:32:35 AM »

hi everyone! My name is Madison and I am 22. I was recently diagnosed with ESRD and have been on peritoneal home dialysis for about a month now. I was diagnosed on 9/1/18, after being so fluid overloaded I couldn't breath enough to walk into work. I drove myself into the ER where they diagnosed me and almost immediately started my on dialysis. My creative and BUN were through the roof. The doctors ran ultrasounds, labs, and performed a biopsy to try and determine why my kidneys failed but ultimately no luck! I'm still adjusting to the diet and the overall lifestyle change. I'm glad I found this forum for some support, because no one in my family has ever dealt with such a serious disease. Thanks to everyone for sharing your experiences!
-Madison


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iolaire

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Re: hello from California

« Reply #1 on: November 11, 2018, 12:54:06 PM »

Welcome to the group. I’m glad you found the site it’s a great educational and more support group.

Many of us feel dialysis was easier to manager because we knew about our treatment options and have read about other people’s experiences so we could better manage our own care.


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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.

cassandra

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When all else fails run in circles, shout loudly

Re: hello from California

« Reply #2 on: November 11, 2018, 01:21:18 PM »

Hi Madison

to the site.

I'm very sorry for the way you got into D. A bit like me. And I'm very happy you found this site. I owe my life to an awful lot of people, and the people on this site including the ones who are no longer with us are a main part of those. IHD changed my life for the better, I hope it does for you too.

Love, luck and strength, Cas


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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

still on waitinglist, still ok I think

Paul

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That's another fine TARDIS you got me into Stanley

Re: hello from California

« Reply #3 on: November 11, 2018, 04:05:13 PM »

Hello Madison. Welcome to the site.


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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!

Cupcake

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a good year for Chevys

Re: hello from California

« Reply #4 on: November 11, 2018, 05:23:27 PM »

Welcome! and keep us posted how things are going!


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PD for 2 years then living donor transplant October 2018.

Charlie B53

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Re: hello from California

« Reply #5 on: November 11, 2018, 07:41:53 PM »

Maddawg Madison, I like it.

Welcome to IHD. You can find a lot of information here that your Dr and PD Team may not be so forthcoming with as they are on the other end of the hose. They are not the ones that are going through this.

You are very fortunate that you sought medical care when you did. You were very near collapse.

I did PD 3 1/2 years until I screwed up and caused an infection. Don't be like me. ALWAYS take your time making all set-ups and connections. CLEAN those hands better than I did.

Once I learned what foods I shouldn't have so much of, and which ones I could have more of, I did well.

It is a very steep learning curve but there are tons of information available on line both here and a couple of the kidney.org and kidneyschool.org sites.

Spend time studying, learn as much as possible about kidneys, your body, the different types of Dialysis, more knowledge the better decision making.

Take Care,

Charlie B53


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