Hello From Toronto

neilm

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Hello From Toronto

« on: October 29, 2018, 12:24:38 AM »

Hi there. I'd like to introduce myself:

2.5 years ago I was an otherwise healthy 46 year old experiencing recent trouble with my vision, went to an eye doctor who sent me to a specialist. He quickly determined that my BP was through the roof (220/140), ended up at GP who sent me to the ER where they told me that my kidneys were trashed (eGFR 10).

After a week in the hospital I was sent home with a whack of BP meds and an appointment with a nephrologist.

The last six months I have been feeling better with much more energy. Was going for long daily walks and playing hockey twice a week. Fluid in legs virtually disappeared but alas these seems to have coincided with my kidneys going south.

EGFR in May was 11, 10 in June, 9 in July, 8 in August and down to 6 at the end of September.

Had Fistula surgery October 1st.

Looks like dialysis is in my immediate future...


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cassandra

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When all else fails run in circles, shout loudly

Re: Hello From Toronto

« Reply #1 on: October 29, 2018, 11:16:41 AM »

Welcome to the site neilm

Take care, Cas


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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

still on waitinglist, still ok I think

iolaire

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Re: Hello From Toronto

« Reply #2 on: October 29, 2018, 11:23:36 AM »

neilm welcome - I'm glad you found the site. There is a lot of information to be had here and a lot of people ready to share their experiences and suggestions.


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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.

Charlie B53

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Re: Hello From Toronto

« Reply #3 on: October 29, 2018, 04:16:07 PM »

Welcome to IHD!

You have ahd a serious wake-up call. Fortunate you are in decent physical shape or it would have been far worse.

Study up on the Renal Diet. Learning how to eat much much healthier is critical not only for keeping what little kidney function you have remaining, but also helps general whole body health as well.

Sadly, fluid control is necessary. Learning how to balance thirst with only a very limited fluid intake isn't so easy. It takes a LOT of patience. Sugarless candies, breathe mints, even a small smooth rock. A peddle in the mouth will stimulate saliva glands and help keep the mouth, tongue, and throat soothed somewhat. Learned that in survival training, US Army 1972. It's hard to forget stupid stuff drilled into your head. But it kept me alive.

Take Care,

Charlie B53


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justagirl2325

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Re: Hello From Toronto

« Reply #4 on: October 30, 2018, 09:19:24 AM »

Hi there, also from Ontario.

Welcome


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kickingandscreaming

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Re: Hello From Toronto

« Reply #5 on: October 30, 2018, 11:31:40 AM »

Welcome, and sorry you have to be here. Good luck to you.


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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16

Paul

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That's another fine TARDIS you got me into Stanley

Re: Hello From Toronto

« Reply #6 on: October 30, 2018, 03:27:02 PM »

Hello Neilm. Welcome to the site.


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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!

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