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| | |-+  Still feeling bad despite new Cath
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Author Topic: Still feeling bad despite new Cath  (Read 975 times)
Aaisha.Dar
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« Reply #25 on: October 17, 2018, 03:13:00 PM »

Im just happy im off sensipar. I really feel so bad when i hear people have to take this medicine because insurance has a problem paying for it and patients hate taking it because of the side effects
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lulu836
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« Reply #26 on: October 17, 2018, 03:27:06 PM »

Sensipar is now part of the Medicare "bundle". 
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Of all the things I've lost, I miss my kidneys the most.
Aaisha.Dar
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« Reply #27 on: October 18, 2018, 11:20:04 AM »

Update: today I came into dialysis having only gained .2... can I please be applauded for that. That takes work. Anyways they set the machine to remove 1.7 I think that is my new max. I went through the whole treatment. After an hour and a half my blood pressure dropped ( i could tell, I wasnt feeling good) so they turned it off for 10 minutes. That mini break seemed to let my body recoopeerate. They did profile 5 which removes fluid takes a break then starts to pull again. So yes, treatment was bearable today. Thank you God
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GA_DAWG
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« Reply #28 on: October 18, 2018, 05:34:22 PM »

Glad you had an easier session. Hopefully they can find a setting that makes it easier all, or most, of the time. It's hard enough as is without constant wondering if something is going to go wrong.  And definitely applause for the .2.
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Aaisha.Dar
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« Reply #29 on: October 18, 2018, 06:38:34 PM »

 :bandance;
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cassandra
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When all else fails run in circles, shout loudly

« Reply #30 on: October 18, 2018, 10:58:47 PM »

Well done girl!!!!!!


   :cheer: :cheer: :cheer:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
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