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donnia
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me and my donor Joyce

« on: April 27, 2007, 06:14:47 PM »

Okay, I know I would LOOOOOVE to go to Hawaii one day... don't know if it would ever happen tho....  What I want to know is, where is your favorite vacation spot?  Where would you love to go?  Do you have any vacationing secrets to save us lots of money???  Come on yall.... share share share !
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Chicken Little
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« Reply #1 on: April 27, 2007, 09:06:46 PM »

I love Hawaii. We used to go to Hawaii 3-5 times a year before I got sick.  I miss it so much.   :'(  We thought about relocating there, but the medical care just isn't up to par for dialysis/transplant patients.  There are patients from Hawaii in my dialysis clinic all the time that were flown here for treatment. 

I really want to go to Fiji, Australia and South Africa, but not until I'm transplanted and can dive again. 

As for saving money, I am a Mileage Ho.  I put everything and anything I can on a credit card with a mileage or points program and pay off the card each month.  Even my home utilities are charged to my cards.  We fly free and get free rental cars with all the points.  :2thumbsup;
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kitkatz
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« Reply #2 on: April 28, 2007, 07:00:43 PM »

Pismo Beach....We stayed with the kids, but what a romantic place that is. 
Walks on the beach watching the sunrise.
Looking for sand dollars the seagulls have not eaten.
Finding that perfect one and admiring its beauty.
Driving through the countryside looking at the beaches.
Driving to find a restaurant neither has tried before.
Walking down to the center of town.
Window shopping, looking in the boutiques for special things.
Clam chowder and a piece of pie.
Holding hands while walking on the pier looking at the ocean.
Waves lapping at your feet while you watch the sunset.
Talking and laughing with each other.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kitkatz
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« Reply #3 on: April 28, 2007, 07:03:10 PM »

Lake Tahoe is cool, too.
Beautiful lake to look at.
We had a rainbow arc out over the mountain and the lake one morning!
The ski slopes are fabulous. Although we went in the summer, so no snow.
Gift shops and shopping galore.
Casinos are well lit and clean.
The restaurants are many and some serve reasonably priced food. They can be pricey so choose wisely.
There are tours around the lake that will show you everything around the lake area.  We took one. It was a good value.
We saw more stuff than we knew was there.
There are hiking and biking trails everywhere around the lake.
They offer four wheel driving adventure for the adventerous traveler.
Fishing and boating activities galore.
There are two paddle wheelers that go out on the lake for cruises.  I recommend the dinner cruises. Very romantic. For around thirty dollars each you get the cruise and dinner with champagne.
Reno is an hour's drive.
The wine country area is down the mountain a ways.
The historic capital of Nevada is down the moutnain, too.  It is a nice little town to see.
Beautiful scenery and picture places abound!
Dialysis can be done is Reno. Not a bad drive. It is about an hour away.


Yes, I am stealing my posts on Renal Romance over to here.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
George Jung
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« Reply #4 on: April 28, 2007, 07:27:55 PM »

Plya del Carmen
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Laurie
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May 13, 2008

« Reply #5 on: April 30, 2007, 10:13:22 AM »

If I could go anywhere in the world, I would choose Hawaii  :2thumbsup;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
paris
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« Reply #6 on: April 30, 2007, 10:50:44 AM »

My daughter works for Nowegian Cruise Lines in Hawaii -- and I agree that it is one of the most beautiful spots in the world.  I have been fortunate to travel to many wonderful countries----but true to my "name", I would go to Paris.  ;musicalnote; I love Paris in the springtime, I love Paris in the fall  ;musicalnote; 




EDITED:  Fixed  ;musicalnote; icon error - Goofynina/Admin.
« Last Edit: April 30, 2007, 03:00:45 PM by goofynina » Logged



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Wattle
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« Reply #7 on: October 18, 2007, 12:42:50 AM »

:bump;

What about travelling to Hawaii on PD? How do you think I would go?    :urcrazy;

I think I would have to go back to doing CAPD as I don't think Fresenius has the sleep safe in the area. But that would be o.k. I am a little unsure if it is worth all the fuss. Travel insurance etc. Maybe I should stay in Australia?

opinions would be great!   ;D
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
angela515
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« Reply #8 on: October 18, 2007, 06:13:35 AM »

What is a "sleep safe"?

I wouldn't let PD stop you from going on vacation... enjoy your life, embrace it! :)

I went on a few vacations when I was on PD... and I remained on my cycler. I had Fresenius deliver a cycler to the hotel in the state I was staying in, and the supplies I would need while there... so i didn't have to bring anything with me but like my clamp and w/e I wanted, but nothing big like a cycler or supplies.. and when your done, they come pick up your cycler from the hotel.

Good luck hun!
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Beth36
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« Reply #9 on: October 18, 2007, 06:54:01 AM »

My fave place is St. John in the USVI!!  My dh and I got married there and spent our first wedding anniversary there.  I love love love it! We plan on taking our son one day and since we just celebrated our 7th wedding anniversary, it is a pretty lucky place for us.  Trunk Bay is gorgeous and a great place to snorkel.  We always reant a villa and they are pretty reasonable and usually have private pools, so you can skinny dip!  It's very family friendly and the people are so welcoming and nice.  Great food, beautiful beaches, romantic atmosphere, GREAT shopping at St. Thomas, and nice people make it worth the trip!


Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
paddbear0000
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« Reply #10 on: October 18, 2007, 11:53:50 AM »

The only vacations I've ever been on was to relatives houses in East Hampton, NY and Jacksonville, FL. Way too crowded and obnoxious in East Hampton and way too boring in Jacksonville for me. Oh yeah, and my honeymoon to Vegas, but my husband and I weren't thrilled with that either. If I could go anywhere, I'd love to travel around Italy.
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boxman55
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« Reply #11 on: October 18, 2007, 04:18:27 PM »

You know I hate questions like these, Medicare will not pay for dialysis outside the US so I can't go where I really would like to, I feel trapped. The other day I went to lunch with a few people and vacation came up. They all started talking about differant islands and such, I just kept my mouth shut and was mildly pissed...Boxman
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"Be the change you wished to be"
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angela515
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« Reply #12 on: October 18, 2007, 05:18:50 PM »

You know I hate questions like these, Medicare will not pay for dialysis outside the US so I can't go where I really would like to, I feel trapped. The other day I went to lunch with a few people and vacation came up. They all started talking about differant islands and such, I just kept my mouth shut and was mildly pissed...Boxman

You must be on hemo?
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
boxman55
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« Reply #13 on: October 19, 2007, 05:44:21 AM »

You must be on hemo?
Yes I am Angela, M-W-F from 1:30pm to 5:00 started Hemo on 8/14/06 got on transplant list 2/07 still waiting for the call...Boxman
 
 
« Last Edit: October 19, 2007, 08:48:33 AM by boxman55 » Logged


"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
angela515
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« Reply #14 on: October 19, 2007, 05:50:42 AM »

You know I hate questions like these, Medicare will not pay for dialysis outside the US so I can't go where I really would like to, I feel trapped. The other day I went to lunch with a few people and vacation came up. They all started talking about differant islands and such, I just kept my mouth shut and was mildly pissed...Boxman

You must be on hemo?
You must be on hemo?
Yes I am Angela, M-W-F from 1:30pm to 5:00 stated Hemo on 8/14/06 got on transplant list 2/07...Boxman
 

So, you have a working transplant, as of right now? I'm just confused by your previous post, why can't you go on vacation b/c dialysis isn't covered ooutside the US? Did you mean when you were on dialysis? Sorry :)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
boxman55
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« Reply #15 on: October 19, 2007, 08:45:59 AM »

I am on dialysis as we speak. I qualified to go on the list, no transplant yet. and yes no travel out of the country unless I want to pay for dialysis out of my own pocket.. Sorry I wasn't clearer....Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
angela515
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« Reply #16 on: October 19, 2007, 06:07:15 PM »

Sorry boxman!! *I* missed it, you did say transplant list, I seen transplant, but not the word list the first time! Doh! Sorry hun!

I get what your saying now, totally understand, and yah, that sucks!
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #17 on: October 19, 2007, 07:56:48 PM »

:bump;

What about travelling to Hawaii on PD? How do you think I would go?     :urcrazy;

I think I would have to go back to doing CAPD as I don't think Fresenius has the sleep safe in the area. But that would be o.k. I am a little unsure if it is worth all the fuss. Travel insurance etc. Maybe I should stay in Australia?

opinions would be great!   ;D

Wattle travelling to Hawaii, you won't have any problems girl, but please can someone Warn the Hawaiians lol  ;)
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Wattle
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« Reply #18 on: October 20, 2007, 04:50:05 AM »

 :rofl;  Haha Very Funny Tamara    :rofl; :rofl;
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PKD
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July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Wattle
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« Reply #19 on: October 20, 2007, 05:01:38 AM »

What is a "sleep safe"?

Sleep Safe is my Fresenius Cycler. I did post a pic in the home set up section. I think the States are still using the Newton IQ. Please correct me if I am wrong. I think it would be a hassell to bring it over. So I would have to go back to CAPD. I think I will can the Hawaii idea for the moment and stay within Australia. It was a nice idea, to help celebrate a special birthday.   8)
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
angela515
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« Reply #20 on: October 20, 2007, 02:16:45 PM »

Ahh, ok.. yah, I was on the IQ. Now I get what you meant :)
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« Reply #21 on: October 20, 2007, 06:38:59 PM »

Okay, I know I would LOOOOOVE to go to Hawaii one day... don't know if it would ever happen tho....  What I want to know is, where is your favorite vacation spot?  Where would you love to go?  Do you have any vacationing secrets to save us lots of money???  Come on yall.... share share share !

My favorite is going to Arizona, wouldn't mind living there. Only other place I would like to go is Austrailia or New Zealand, but I might have a phobia of flying over large amounts of water. (to many airport movies). Hmm vacation secrete #256, WIN THE LOTTO? :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
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Eye Surgery - Nov 2012
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No two day's are the same, are they?
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