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Author Topic: HLA antibodies  (Read 343 times)
uttanutta
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« on: September 13, 2018, 12:32:27 AM »

Hi peps quick question has anybody on here had a transplant with high HLA antibodies?I am on the transplant waiting list but have been told my chances are pretty slim or will have to wait long time.I have already been on list for 5years
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KatieV
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« Reply #1 on: September 13, 2018, 07:38:51 AM »

My brother had 99.99999% HLA antibodies.  He needed an absolutely perfect match.  He received a transplant as part of a transplant chain and has done very well.  I also have really have HLAs - I have joined the same transplant program hoping to get a transplant.  I need to find a living donor who will donate on my behalf as part of the chain.  Once I have a donor, they will put us into their computer system and make matches.  My brother's chain involved 16 donors and 16 recipients!

I recommend finding a transplant program that does chains.  It will up your chances and decrease your waiting time.
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March 2007 - Brother diagnosed with ESRD, started dialysis 3 days later
April 2007 - Myself and sister also diagnosed with Senior-Loken Syndrome (Juvenile Nephronophthisis and Retintis Pigmentosa)

Since then, I've tried PD three times unsuccessfully, done In-Center hemo, NxStage short daily, Nocturnal NxStage, and had two transplants.  Currently doing NxStage short daily while waiting for a third transplant.

Married Sept. 2011 to my wonderful husband, James, who jumped into NxStage training only 51 days after our wedding!
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uttanutta
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« Reply #2 on: September 13, 2018, 04:43:15 PM »

thank you so much for your reply,i had sorta given up hope of a transplant so to hear it is possible has made my day!I will try and stay positive and keep my fingers crossed ;D
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