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Author Topic: Got the call  (Read 10388 times)
Simon Dog
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« on: September 07, 2018, 02:26:06 PM »
Age 60, O neg, waitlist Boston area for 6 years 3 months.

Just got the call.   24 year old female, OD probable cause of death (negative tox screen), KDPI 33.

F'in 33!!!   I told the surgeon I would have to stop and buy a lottery ticket on the way to the hospital.
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Michelle2016
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« Reply #1 on: September 07, 2018, 03:08:37 PM »
I’m so happy for you. Wish you the best.  :bandance;
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kristina
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« Reply #2 on: September 07, 2018, 03:23:53 PM »
Good luck Simon !!!!!!! You have been patiently waiting a long time for this good luck to come along  !!!!!!
I wish you all the best for a good outcome of the operation and the medication afterwards and please let us know how "things" develop.
All the best wishes to you from Kristina. :grouphug;
P.S. Did you buy your lottery ticket on the way to the hospital ?  :waving;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Simon Dog
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« Reply #3 on: September 07, 2018, 03:35:02 PM »
Still at home.  Surgeon called back and said the hospital will call shortly with instructions.  Surgery now scheduled for 10PM.

Despite not being a D patient after today, my hosting/support services for this site will continue.
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kickingandscreaming
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« Reply #4 on: September 07, 2018, 03:39:00 PM »
Congratulations, SD. I hope everything goes smoothly.  The wait is over.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #5 on: September 07, 2018, 03:56:10 PM »
Great news Simon!

 Please keep us updated with your status.

Thanks for all that you do for this site :clap;
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
Simon Dog
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« Reply #6 on: September 07, 2018, 04:09:02 PM »
Got instructions.   Leaving for wallet biopsy and admission now.
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tigtink
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« Reply #7 on: September 07, 2018, 05:32:49 PM »
Great news!! Good luck!
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MooseMom
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« Reply #8 on: September 07, 2018, 07:52:41 PM »
OMG, that's such incredible news!!!  I'm so excited for you and am really hoping that the next time you post it will be for giving us all of the details of your successful surgery.
And don't forget that this site is for tx peeps, too.  The hatred for dialysis never goes away!

Oh wow...this is so great.  I hope everything goes well for you!!!  Good luck!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Blake nighsonger
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« Reply #9 on: September 07, 2018, 09:17:19 PM »
Wow great News! Wow! Speedy recovery to you Tim'!!!:)) keep us posted sir.  Ty

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iolaire
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« Reply #10 on: September 07, 2018, 09:47:22 PM »
Congratulations!  I hope all goes or has gone well.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Rerun
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Going through life tied to a chair!
« Reply #11 on: September 07, 2018, 11:02:15 PM »
I hope and pray all goes well! 

                :beer1; 
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PrimeTimer
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« Reply #12 on: September 07, 2018, 11:57:50 PM »
That's excellent news! Here's to a speedy recovery  :beer1;  We'll be right here waiting for updates!  :popcorn;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Simon Dog
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« Reply #13 on: September 08, 2018, 05:10:59 AM »
Quote from: Blake nighsonger on September 07, 2018, 09:17:19 PM
Wow great News! Wow! Speedy recovery to you Tim'!!!:)) keep us posted sir.  Ty
who is Tim?   Planting done, in recovery  room now.
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kristina
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« Reply #14 on: September 08, 2018, 05:50:01 AM »
Hello Simon,
I send you all my best wishes for your successful recovery.
Good luck wishes and take great care,
Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cassandra
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When all else fails run in circles, shout loudly
« Reply #15 on: September 08, 2018, 07:39:43 AM »
Fantastic News Simon Dog!!!


  :yahoo;


Lots of luck, love and strength, Cas.  :cheer:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MooseMom
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« Reply #16 on: September 08, 2018, 08:04:29 AM »
Thanks so much for letting us know that the surgery is done and you are on your way to recovery.  Please keep giving us updates!  I am thrilled to bits for you and hope your new life with a new kidney will be all you dreamed of.

Please let us know if you have any questions and if we can help in any way.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #17 on: September 08, 2018, 11:49:43 AM »
Wonderful news! Here is to an excellent recovery! Whoop, whoop!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Paul
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That's another fine TARDIS you got me into Stanley
« Reply #18 on: September 08, 2018, 02:14:26 PM »
 :bandance; Great news, congratulations.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
Charlie B53
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« Reply #19 on: September 09, 2018, 06:06:47 PM »

Wonderful News!

OK, consider me stupid but what's with the 33?

I'm still much like a newbie and do not know a lot of terms.


Wallet Biopsy?    They think your wallet is too fat and needs to be bled out?

Praying it takes well and you never have any problem with the new meds.
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justagirl2325
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« Reply #20 on: September 10, 2018, 07:33:46 AM »
Congratulations, I'm very happy for you.  Welcome to post dialysis life.
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SooMK
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« Reply #21 on: September 10, 2018, 09:06:47 AM »
Yay! Congratulations. I hope all goes smoothly--you've been waiting such a long time!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Simon Dog
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« Reply #22 on: September 10, 2018, 01:38:18 PM »
Quote from: Charlie B53 on September 09, 2018, 06:06:47 PM
Wallet Biopsy?    They think your wallet is too fat and needs to be bled out?
Basically.   This is the US - cash, grass or ass ... no one rides for free.

As to the 33 - kidneys are given a KDPI (kidney donor profile index) of 1-100, 1 is best.  Because of my age (60) I do not qualify for a KDPI <=20 and <=30s are given to pediatric patients before being offered to others.  So, 33 is pretty close to the best I am eligible for.   It was the right kidney from a 24 year old female.
« Last Edit: September 10, 2018, 01:53:00 PM by Simon Dog » Logged
MooseMom
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« Reply #23 on: September 10, 2018, 01:45:54 PM »
Oooh, enough with the numbers!  LOL!  How are you FEELING?  How are you getting on with all of the lessons about the meds? 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
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Going through life tied to a chair!
« Reply #24 on: September 10, 2018, 08:52:01 PM »
God bless her and her family.  Don't take your kidneys to Heaven .... Heaven knows we need them Here!!       

Hope you are feeling great~!   Liquid Gold.......     :bestwishes;   :bestwishes;
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