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Author Topic: Introducing myself  (Read 807 times)
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« on: August 09, 2018, 02:35:42 PM »

Hello everyone jckofheart here. New member as of today to both this forum and PD as I had my first solo treatment at home last night
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« Reply #1 on: August 09, 2018, 03:42:35 PM »

Welcome, and congratulations on your maiden voyage.  I do PD also.  Works for me (so far).

Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
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When all else fails run in circles, shout loudly

« Reply #2 on: August 09, 2018, 11:30:39 PM »

Welcome to the site jckofheart


Good luck, Cas

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Charlie B53
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« Reply #3 on: August 10, 2018, 03:34:21 AM »

Welcome to IHD!

PD worked well for me for 3 1/2 years until I failed to stay extra cautious during my set-up one evening. I must have 'touched' and open fitting while making bag connections.  So slight I didn't even realize that I had done it.  The resulting infection had me in the ER long before morning.  Infection will grow that fast and so badly that you can barely draw in a breath, it hurts that bad.

STAY Extremely careful during ALL Set-Ups!

Other than that PD is great in that the freedom of diet and fluid consumption is wonderful!  Unlike the strict limits while on Hemo, there is absolutely NO Comparison.  Travel can be awkward, but still very possible.  You just need to plan ahead, make double sure you take along extra supplies just in case anything goes wrong with a set-up that you have 'spares' of everything, just in case.

Take Care,

Charlie B53
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« Reply #4 on: August 10, 2018, 09:54:12 AM »

 :welcomesign;  to IHD. Hope your "first time" went well and it continues to go well. Enjoy this site, there is always some one to answer your questions.

One day at a time, thats all I can do.
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That's another fine TARDIS you got me into Stanley

« Reply #5 on: August 11, 2018, 10:42:38 PM »

Hello Jckofheart. Welcome to the site.

Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
Vt Big Rig
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« Reply #6 on: August 12, 2018, 07:19:31 AM »

Welcome to the site

VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
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