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Author Topic: Relentless Itching  (Read 385 times)
CTexas
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« on: August 05, 2018, 02:52:41 PM »

I have been on PD now for 5 months. I have relentless Itching  on my back and legs. The nurse keeps telling me it will get better but it is so miserable. I  suffered a very bad rash  during the months  before I was diagnosed. While it has improved and I don't have near as many sores, I still never get a day of relief. It gets allot worse at night. It wears me down so much otherwise I would be ok with everything else.
I guess my question is does it ever go away???
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kickingandscreaming
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« Reply #1 on: August 05, 2018, 03:50:56 PM »

Have you checked your phosphorus level?  Excess Phos. causes itching (among many even worse things).  I have had bad itching and rashes and it's from all the tape I wear--on my exit site and to hold up my PD catheter.  Turns out I'm very sensitive to adhesives. And the itching wasn't always right at the site of the adhesive either.  I used to wear a PD belt that involve elastic at the waist.  I developed a horrible rash and it wasn't anywhere near the elastic (it was only on my right leg).  Almost as soon as I retired the belt, the rash went away. Might that be involved?
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Charlie B53
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« Reply #2 on: August 05, 2018, 06:46:28 PM »


Even with well controlled phos I itch.  A couple of the Ladies in my clinic told me they found measurable relief taking one capsule of the spice Turmeric daily.

I was surprised that it worked also for me.  I just bought another bottle today.  Sticker shock, I had forgotten how much it costs.

$23 for 150 capsules.  These should last me 5 months, maybe I better start shopping now!
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CTexas
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« Reply #3 on: August 06, 2018, 11:07:08 AM »

I have tried virtually every cream out there and nothing works. I am willing to try Tumeric.
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Robin
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« Reply #4 on: August 06, 2018, 01:37:22 PM »

J
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Paul
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That's another fine TARDIS you got me into Stanley

« Reply #5 on: August 07, 2018, 03:23:06 PM »

CTexas - As kickingandscreaming said, that does sound like too high phosphorus. I would make getting that checked out an urgent item, because what kickingandscreaming refers to as "many even worse things" includes such unpleasant side effects as; stroke, heart attack, death, etc.. You do not want any of those.


I was surprised that it worked also for me.  I just bought another bottle today.  Sticker shock, I had forgotten how much it costs. $23 for 150 capsules.

Seriously? Those things just contain turmeric and black pepper. If your prices are in the same range as the UK (and you are nearer the countries that produce them, so you should be paying less) a big bag of each in the powder form will cost you about four dollars. A teaspoon is as good a server as a cellulose capsule. If you really must have then in capsule form, then buy a capsule machine on Amazon and a bag of capsules. The machine (again going by UK prices) will cost about $30, so it will be about 10 months before you get your money back, but after that the capsules are a fraction of what you are paying.

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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #6 on: August 07, 2018, 03:26:05 PM »

I have tried virtually every cream out there and nothing works. I am willing to try Tumeric.

If it is phosphate most (maybe all) creams will not work. Turmeric with a little pepper added, is a godsend. Not only stops the itching it is good for you in many other ways.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
iolaire
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« Reply #7 on: August 07, 2018, 03:51:21 PM »

$23 for 150 capsules.  These should last me 5 months, maybe I better start shopping now!

That looks to be about the average price ~25 cents per capsule, but amazon has them as low as 4 cents per capsule on my first page of results for 4* products

I'm not familiar with this brand but it has an ok number of reviews @ 4 cents/capsule (add on item, no free prime shipping without other items)
https://www.amazon.com/Turmeric-Capsules-180-Count-500mg/dp/B009R8AG6E

Puritan's Pride is a brand I recognize  @ 6 cents/capsule
https://www.amazon.com/Puritans-Pride-Turmeric-Curcumin-Capsules/dp/B004R68S2K

Costco's price is as high as your used to but its 1000 mg not the 500 in the two examples above:
https://www.costco.com/Nature's-Lab-Turmeric-Curcumin-C3%2c-1000-mg.%2c-120-Vegetarian-Capsules.product.100088941.html
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Whamo
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« Reply #8 on: August 09, 2018, 04:06:43 PM »

I take Tumeric almost everyday.  It makes dry skin look like velvet.
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