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Author Topic: New & Struggling  (Read 11978 times)
MooseMom
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« Reply #25 on: June 20, 2018, 03:35:32 PM »
Quote from: cassandra on June 20, 2018, 03:27:38 PM

Love, luck and strength, Cas

...and protein snakes!  Yumtastic!   :rofl;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Charlie B53
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« Reply #26 on: June 21, 2018, 06:55:55 AM »

Typo - my dictionary didn't underline it because it is a word.  Not the word I intended, obviously.

I needed that laugh.

Terrible pain last 5 weeks I suspect a pinched nerve in lower back.  Appt on the 5th.  Soonest he can get me in.

I'll live, even though I don't feel like it.

I have been soo forgetful, making some of the stupidest mistakes.  Stay in bed a lot.
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Paul
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That's another fine TARDIS you got me into Stanley
« Reply #27 on: June 21, 2018, 09:00:47 AM »
Quote from: cassandra on June 20, 2018, 03:27:38 PM
   :banghead;  I feel terrible for not correcting Charlies tiny spelling error, and all the confusion that caused.

If you are really, really quick, you can catch his alien rave on the chimp on LSD thread! :)

PS I wish they had Raves in space when I was young enough to go to raves.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
kristina
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« Reply #28 on: June 26, 2018, 07:24:21 AM »
Quote from: CTexas on June 01, 2018, 01:07:28 PM
Hi! For months I was struggling with hives and a rash. Tried everything and could not get it to go away.  Went to a couple of doctor's , no luck. The third doctor did a blood test and I was diagnosed stage 5 kidney failure.  I had no clue, kidneys problems never crossed my mind and no one in my family has had them.  I spent the first week of April in the hospital and just completed 1 month of home diaylsis. I am trying to find my way between using the cycler and manual; which is better and most effective??. The whole diet issue is driving me crazy, every list says something different.( I am not diabetic nor do I have high BP.) I am still fighting itchy skin at night, which every doctor seems to ignore. The stage 5 diagnosis is so scary but at the same time I have had people say to me " well, you don't look sick!". I am 53 but very active. I am just all over the place right now and trying to find my way.

Hello again and please check-up whether you are somehow allergic to any special food  ? I know someone who suffers from an allergy to vinegar and tomatoes and it took ages to find out, but now things go much better...
Good luck again from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kristina
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« Reply #29 on: July 13, 2018, 04:13:31 PM »
Quote from: CTexas on June 01, 2018, 04:24:08 PM
What about vegtables? I have seen list if do's and don't and then one today that said all fresh vegetables are fine.

Vegetables have to be treated rather carefully because of the potassium and it helps a lot to always cook vegetables in big cooking-pots with lots and lots of water, because that "bleaches out" lots of the potassium ... But ... to eat huge portions of vegetables is not recommendable, because the potassium can be a bit of a strain on the other organs of your body. Best is to eat small portions and keep a good balance.
Best wishes and good luck from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
ezilu
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« Reply #30 on: August 28, 2018, 10:06:37 PM »
Quote from: Paul on June 17, 2018, 04:25:32 PM
Ezilu - Thanks, that is a really useful post on phosphorus.

Although WRT "Try layering your binders; take 1 before a meal and one after, another in the middle if your meal is particularly high in phosphorus.": I would say that if you need three binders per meal, you really should be looking at reducing the quantity of high phosphorus rather than taking that many binders.


Thanks! Hoping my fight might help someone else down the line if nothing else.

My Rx for 2 pills per meal and the 3rd suggested by my dietian if I'm eating something particular high in phos!
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Charlie B53
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« Reply #31 on: August 30, 2018, 05:44:35 AM »

I've always been fortunate that my stomach and digestive system is quite robust.  I can eat most everything without problem and seldom ever have any acid reflux, end even those rare times I do it is because I've skipped a meal for to long.  Just a simple bite or drink of something besides water and the fire instantly goes out.

Binders, I regularly take at least 3, most often 4 at a time.  I tried 2 and 3 but noticed a rise in my labs.  Here again II must be Blessed with Good Fortune as I have yet to encounter any of the stomach or bowel problems that some people have with binders.

Wife constipates very easily. I have started giving her Miralaxx as I can easily hide it in most any drink so that she doesn't even know I've done it.  Sadly I have to as she will not admit to herself that she needs it.
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Loboferos
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« Reply #32 on: September 01, 2018, 09:28:33 AM »
Get your phosphorus checked..
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Cupcake
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a good year for Chevys
« Reply #33 on: September 03, 2018, 07:13:46 PM »
Welcome beautiful! I'm old enuf to be your mother but sadly there are lots of people your age on the forum. Keep in touch!
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PD for 2 years then living donor transplant October 2018.
lulu836
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« Reply #34 on: September 03, 2018, 10:09:34 PM »
Quote from: Beautiful123 on September 03, 2018, 03:28:16 PM
I hate my life. I would like to chat to ppl in my age group

Make an introductory post as requested.  Most but not all people read new posts but more of us read introductions.
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Of all the things I've lost, I miss my kidneys the most.
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