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Raven999
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« on: May 24, 2018, 06:51:41 AM »

Hi there, I'm a 61 year old female who came out of a three week coma to find myself on dialysis. So I suppose you could say I was thrown into it. I'm just beginning to understand the options that may be available to me a little further down the line once I've recovered from all the other things that went wrong this year...lol.

I found this site while searching for information regarding phosphorous. I've recently found that added phosphorous is in almost every cereal there is out there. Rice Crispies is my friend.  :) I look forward to soaking in as much info as I can.

Raven
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Raven
iolaire
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« Reply #1 on: May 24, 2018, 07:09:47 AM »

Welcome to the group. 

I hope you are able to recover from your other medical concerns.  Dialysis can become a long term kidney replacement.  For many its manageable especially if you have the freedom to focus on adjusting to dialysis without piling it on top of many other medical issues.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
kickingandscreaming
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« Reply #2 on: May 24, 2018, 12:22:52 PM »

Welcome, Raven.  You certainly had an abrupt landing.  But congrats on landing at all. 

I'm 76 and I've been doing PD for 2 years now.  It works well for me. But on top of the kidney issues, in the last year I've developed several heart problems.  So I know how hard it can be to have comorbidities.   I used to be a VERY healthy person until my 74th year when I was hit with a ton of health issues.  I hope you have a better time of it.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #3 on: May 24, 2018, 01:11:13 PM »

 :welcomesign;
Hello Raven, welcome to the site.

Yeah, not the sort of wake up I'd like to have.

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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
cassandra
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When all else fails run in circles, shout loudly

« Reply #4 on: May 24, 2018, 02:39:35 PM »

Welcome to the site Raven


   :welcomesign;




Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #5 on: May 26, 2018, 05:21:15 AM »


Welcome to IHD, Raven!

So glad that you did wake up as far too many people do not.  This just proves that there is something yet for you to accomplish.  At least so I Believe.

One bright spot, you skipped the anxiety/anticipation/fear of having dialysis looming in your future.  You might say you jumped straight in with both feet.

My biggest challenge switching to Hemo was learning to take my binders with everything I eat.  Learning to severely limit so many of the foods that I used to pig out on.  And above all, not to gulp any liquids.  I have learned to force myself to 'sip' and set it down, walk away.  That ain't always so easy.

Take Care,

Charlie B53

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Marilee
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Hubby was a PD Person - I was 'support'

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« Reply #6 on: May 28, 2018, 03:02:13 PM »

Hi Raven999 and glad to meet you!
I imagine your head is still spinning with all the changes in your life, glad to be alive but perhaps angry at all the change.

I'm a 61 year old female too whose hubby started dialysis one year ago, and I've spent half the year learning about Phosphorus as a result.
I put together a little website about what I learned that might be useful to you: https://mylowphosdiet.wordpress.com/the-protein-to-phosphorus-ratio/ . One thing I learned about cereals is that Crispix and Special K have about half as much phosphorus as Rice Krispies (I was amazed).

Best wishes as you navigate these new waters!
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As my hubby would say, "Don't let what you can't do get in the way of what you can."
LorinnPKD
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« Reply #7 on: May 30, 2018, 02:53:00 PM »

Hi Raven, and welcome!

Do be sure to check out Marilee's website.  It's excellent!

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