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Author Topic: New Member Introduction  (Read 700 times)
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« on: May 15, 2018, 04:32:41 PM »

Hi Everyone,

I'm a caregiver for my husband, who has been on hemodialysis for the past 3 years and will be transitioning to peritoneal dialysis soon.  We are both retired and are looking forward to having a little more freedom.  I joined IHD to learn about the experiences of other pd dialysis patients and caregivers that might give us insight into this new phase in my husband dialysis care.   I probably will not be posting much, but just hanging out reading others posts. 
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« Reply #1 on: May 16, 2018, 09:29:05 AM »

Welcome, Benniems778.  There is lots of PD information to be had here.  But you are asking in a vague and open ended way so it's hard to "answer." I would suggest beginning by dong a Search of the forum for "PD" and read what comes up.  Then if you have specific issues, ask away.  I have been doing PD for 2 years and would be happy to answer them.

Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
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« Reply #2 on: May 16, 2018, 10:50:03 AM »

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That's another fine TARDIS you got me into Stanley

« Reply #3 on: May 16, 2018, 11:43:54 AM »


Hello benniem778. Welcome to the site.

Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
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When all else fails run in circles, shout loudly

« Reply #4 on: May 16, 2018, 03:02:58 PM »

Welcome to the site benniem778


Take care, Cas

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
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« Reply #5 on: May 16, 2018, 04:08:42 PM »

Welcome to the group.  I hope the PD transition goes well. 

Well on in center HD keep in mind that you do have some level of freedom of location with advanced planning.  i.e. visiting friends or family in other decent sized cities.   

Prior to my transplant I did lots of travel within the US and internationally receiving HD treatments in center at each location.  If you are US based your US center should be able to help you setup visits to other centers, international is more work.   Medicare will only pay for treatments in the US. Otherwise if UK/EU based its possible to travel within the EU and receive treatments under the EU heath plan.

Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Charlie B53
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« Reply #6 on: May 17, 2018, 08:05:59 AM »

Welcome to our IHD 'Family'.

I did PD at home for 3 1/2 years and did quite well.  The freedom to eat and drink whatever I wanted kept my life as close to 'Normal' as any renal patient can be.

After 3 1/2 years I much have become too complacent, rushing to set up my Cycler and start my nightly run I had to have made the slightest error, TOUCHED one of the fitting while making connections of the bags.  I didn't even know that I had done it.  But I must have as during the night my belly became painful.  I first thought it was a minor drain pain that would go away as soon as I started my Fill.  NOT!    I just kept becoming worse.  Until it became so bad that I could barely breath in.  I've NEVER had pain this bad and I have broken multiple bones before.

Long story short, after months of antibiotics the infection still would not die.  The cath had to come out and I have now been on Hemo already a year and a half.

STAY Careful!   ALWAYS.   With EVERY Connection.    Infection control is your MOST important consideration.

Don't make my mistake.

Take Care,

Charlie B53
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