New Introduction

Rsbd703

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« on: March 27, 2018, 10:11:33 AM »

Hello,
My name is Jackie Fulks. I am female, and an active 73yo. I was started on hemodialysis in July of 2017. I am a retired registered nurse, but have little knowledge of dialysis. My access site was was performed by a surgeon in 2012. My problems leading up to dialysis are not the typical problems!! My problems started as a young child with kidney problems requiring hospitalization. In 1978 I had what was called an ilieobypass for weight loss; they no longer do this procedure! I did well until the mid 1990's when I started passing kidney stones; side effect of the surgery. I was passing handfuls of stones every day!! They had just started the Lithitrypsy procedure, and they were scheduling me just about every 2 wks, thus doing severe damage to my kidneys. In the spring of 2017 I had a bout of pneumococcal pneumonia, which started a whole series of problems, one of which was SOB. When it got to the point to where I was having severe breathing problems, I was hospitalized again! What they thought was lung problems, turned out to be kidney problems! I had a large amount of excess fluid and my BUN and Creatnine were very high and the next day they had me on dialysis! I had fought this dialysis battle since 2012, but now, here I am, and with all kinds of questions!!!!


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MooseMom

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Re: New Introduction

« Reply #1 on: March 27, 2018, 11:35:11 AM »

That all sounds so painful! What is the "Lithitrypsy procedure"? Sound like a new Tom Cruise movie.

Please feel free to start a new topic and to ask any questions you'd like!

Welcome to IHD!


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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."

PrimeTimer

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Re: New Introduction

« Reply #2 on: March 27, 2018, 01:25:30 PM »

Welcome to ihd, Jackie! You said you've been fighting the battle since 2012 but sounds like you've been very proactive in your own healthcare for a lot longer. That's great, means you're a fighter AND smart! And asking as many questions as you can will only further help you. Don't be shy. Best of luck!


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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.

cassandra

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When all else fails run in circles, shout loudly

Re: New Introduction

« Reply #3 on: March 27, 2018, 02:37:12 PM »

Welcome to the site Jackie

Take care, Cas


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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

still on waitinglist, still ok I think

kickingandscreaming

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Re: New Introduction

« Reply #4 on: March 27, 2018, 02:57:24 PM »

Jackie. We all have our stories, but some, like yours, are more convoluted than others. This is a very good place for support and enlightenment. Ask away.


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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16

Charlie B53

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Re: New Introduction

« Reply #5 on: March 27, 2018, 03:48:31 PM »

Hi Jackie, and Welcome to IHD. We have a growing 'Family' of afflicted. This is THE best place to find answers and if you cannot find it already posted then simply post your questions and you may be surprised how many have experienced something like that already. If not, hopefully we can help guide you to an answer.

You have quite the experience with prior kidney problems that many of use have never had, but there is a place I highly recommend http://kidneyschool.org/ a well laid out module learning series that addresses most everything related to kidneys and Dialysis. It took me a while to finish as I initially skipped many sections, but I did finally go back and finish them all. Yea!

I hope to read more from you.

Take Care,

Charlie B53


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Paul

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That's another fine TARDIS you got me into Stanley

Re: New Introduction

« Reply #6 on: March 29, 2018, 03:29:44 AM »

Hello Jackie Welcome to the site.


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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!

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