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| | |-+  Venofer (Iron) Injection at home?
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Author Topic: Venofer (Iron) Injection at home?  (Read 2647 times)
alrightstill
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Gender: Female
Posts: 124


BAH!

« on: April 19, 2007, 01:27:02 AM »

 >:(  My unit switched companies and this company will not allow the  home patients to inject any kind'of medicines into the line.. Meaing, they switched me from iv hectoral to oral hectoral (results for me havent been as good).  They tried switching me from iv venofer to repliva (my insurance won't cover repliva..)  But yet, they still allow me to give myself epogen.

The problem is the iron.  The only other way to get it is if I were to go to a hospital once a week for 2 hours for a drip.  Now, my doctor (who was the head honcho of the district who just passed.. rip) was going to override that - and he wrote me a script (the day before he passed :( ) for IV venofer.. to get filled at my local pharmacy.    Now - they won't fill it until they get approval from the doctor and nobody seems to be answering their call .. for almost 2 weeks now, since my doctor passed. 

I guess my question is, does anyone else have such a hard time with getting venofer at home?  I was on it for almost a year and a half before my unit switched companies.  I don't understand why I'm allowed to give myself IV epogen .. but not venofer.  My dialysis nurse from the unit will have nothing to do with it because she doesn't want to get in trouble, and plays the dumb role whenever I bring it up.   :banghead;
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1992 @ age 12 i was suddenly diagnosed with ESRD. 
1992 - 1995: Peritoneal Dialysis
1995: Cadaver Transplant
2001: Kidney rejects, back on PD
2002: too much scar tissue prevents PD from succeeding, go on hemo via permacath,
         transplanted kidney is removed.
Dec 2004 -- 2009t: on NXSTAGE (with the bags NOT pureflow) 6x a week via permacath
Dec 2009: Transplant from a pal
Oct 2016 - present:  Transplant fails, back on NxStage w/pureflow via femoral cath, patiently waiting for next kidney
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