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Author Topic: Awful time during hemo  (Read 11445 times)
smartcookie
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« Reply #25 on: May 25, 2017, 07:21:16 AM »

Another thing you can do to make your hair look fuller is to cut it shorter and to use the spray that women and men use to cover gray hair in between coloring.  It gives the illusion of fuller hair on the scalp. 
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
Riki
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« Reply #26 on: May 26, 2017, 02:49:20 AM »

I'm actually thinking of bleaching my hair, so that it doesn't contrast so much with my scalp.  A friend of my mom's stopped dying her hair, and let it go white, and it doesn't look near as thin as it once did.  She used to always wear hats.  She doesn't anymore.  My best friend, when her hair grew back after chemo, it was thinner, but she has tight curls, and her hair turned silver, so it doesn't look thin at all.  I would love to have silver hair like hers.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
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iolaire
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« Reply #27 on: May 26, 2017, 05:05:47 AM »

I'm actually thinking of bleaching my hair, so that it doesn't contrast so much with my scalp.  A friend of my mom's stopped dying her hair, and let it go white, and it doesn't look near as thin as it once did.  She used to always wear hats.  She doesn't anymore.  My best friend, when her hair grew back after chemo, it was thinner, but she has tight curls, and her hair turned silver, so it doesn't look thin at all.  I would love to have silver hair like hers.
My wife who turns 50 this year stopped dyeing her hair a few years ago.  It looks better (including she don't have periods of time where the roots are showing) and is easier to maintain.  She gets comments on her silver hare at times and a few more rude comments from coworker almost friends...
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
smartcookie
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« Reply #28 on: May 26, 2017, 06:38:40 AM »

It is just silly to be rude to someone about his/her hair!!  If she likes it that way, more power to her!  I love silver hair and it is very in style right now.  I wish I could dye my hair a funky color, but work will not allow it.  I couldn't in high school either because I went to a private school.  I think you should go for the bleached look, Riki!  Post pictures to show us if you do!
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Simon Dog
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« Reply #29 on: May 26, 2017, 06:49:14 AM »

My wife (age 60) does not dye her graying hair.  She is a prefect match for our salt & pepper colored mini schnauzer. They both look good, especially together.
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smartcookie
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« Reply #30 on: May 26, 2017, 06:50:39 AM »

That is so sweet, Simon Dog!!  I am starting to grey a little around my face, but is isn't very noticeable, so I am just going to leave it for now. 
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Riki
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« Reply #31 on: May 26, 2017, 09:00:51 AM »

It is just silly to be rude to someone about his/her hair!!  If she likes it that way, more power to her!  I love silver hair and it is very in style right now.  I wish I could dye my hair a funky color, but work will not allow it.  I couldn't in high school either because I went to a private school.  I think you should go for the bleached look, Riki!  Post pictures to show us if you do!

I was going to do it today, actually.. but it started raining before the drug store opened, and I don't have any rain gear... if I went out in this downpour, even though it would only take a bout 5 minutes to walk over, I'd be shaking with cold went into June.. so I'll wait for a less rainy day to go get the peroxide... Also, I have to do it when my mom isn't around.. she doesn't want me to bleach my hair.. she's afraid it will all fall out...
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smartcookie
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« Reply #32 on: May 26, 2017, 09:06:46 AM »

Sounds like my mom when I have dyed my hair myself!  Mine turns a brassy orangey color when I do at home dyes, no matter what color the dye is.  Let us know how it goes when you do it! 
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apetty
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« Reply #33 on: June 18, 2017, 02:13:46 PM »

I went through a similar experience when I started dialysis.  Being under five feet tall, they were simply removing too much fluid too fast, I still can't tolerate much fluid removal.  Ask your doctor for an RX called VASCEPA (its super concentrated fish oil).  Dialysis doesn't just remove toxins and bad stuff from your body, it also removes a lot of good things your body needs, and especially lipids.  My hair was falling out by the handfuls, but quit falling out and my skin didn't look reptilian after I started the Vascepa. 

Also, when they remove too much fluid too quickly (faster than your cells can refill with the extra fluid you carry around) it causes like a water fall effect, and causes your body to retain more fluid, and also kicks on a thirst instinct that is impossible to ignore (a hard wired thing like breathing)...  Also letting them do this is very dangerous causing organ stunning and irreversible heart damage.  Go to Homedialysis.org and read the articles on Waterfalls. 

Hang in there!
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Amanda Petty
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« Reply #34 on: July 21, 2017, 07:53:27 PM »

Yes, today was one of those days. I got a graft a little over a month ago. My fistula stopped working after three and a half years. The staples were in for a month and the vascular surgeon's plan was to take them out in August! My surgery was June 16th. I switched doctors and got them out last Friday. I couldn't sleep at night because of the pain. Well today they had trouble finding my line at dialysis. They poked and poked until I was about to past out. Then when I asked for Tylenol it took nearly thirty minutes to get it because the nurse forgot! It was not a good day.
« Last Edit: July 21, 2017, 07:58:26 PM by Tora66 » Logged
Charlie B53
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« Reply #35 on: July 22, 2017, 04:55:25 AM »

St Louis news item. A clothing runway show was put on by a group of Ladies all living with alopecia. I'm sure I spelt that wrong. These Ladies are suffering from a medical condition that causes hair loss.  All were totally bald.  They were doing this show to let the world know that Ladies don't have to be so self-conscious with their baldness, they actually look quite nice.

I know nothing about this condition but I did notice that most all of these Ladies were dark skinned.  Is this something that affects a much larger percentage of darker people?






sp mod Cas
« Last Edit: July 22, 2017, 07:31:20 AM by cassandra » Logged
cassandra
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« Reply #36 on: July 22, 2017, 07:43:42 AM »

...
I know nothing about this condition but I did notice that most all of these Ladies were dark skinned.  Is this something that affects a much larger percentage of darker people?






Sp mod Cas

I know the chemicals used in hair relaxer (so you can get through it with a comb etc) when you have Afro hair,  can cause hairloss.

And I don't look 'quite nice' without hair, and I get tired of people asking 'what those scars on my head are from) and it's way too cold
With a bold head. I'm not self conscious, I'm just practical

   ;D
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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