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Author Topic: PD: The beginning of the end  (Read 21243 times)
Charlie B53
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« Reply #75 on: May 07, 2017, 06:12:20 PM »


Wife and I have both been taking Metoprol for years.  She is one a day, small size, while I am twice a day BIG ones.  I used to take almost three times as much as I am now but as I lost all that 100 pounds the Dr had to keep reducing my BP Meds.

Granted, though we are all quite similar many respond quite differently to the same med.  Be careful. Any med that is new to you needs to be taken with large amounts of caution.

I don't think we've ever talked about who is caring for your Fur Baby while you are in the hospital.

Is there someone nearby that helps?  Are you anywhere near another member?  Maybe we should all think about listing zip codes or something, as this could be a problem that needs attention sometimes.

I Pray your procedure goes flawlessly and you may be home by this time Monday.

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kickingandscreaming
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« Reply #76 on: May 07, 2017, 07:01:57 PM »

Thank you.  A neighbor/acquaintance is taking care of my girl.  She does dog boarding.Probably, by now, my dog has given up on ever seeing me again.  Then she will give me the cold shoulder for a bit to punish me for leaving her.  Then she'll forgive me.

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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Simon Dog
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« Reply #77 on: May 07, 2017, 07:06:02 PM »

Then she'll forgive me.
Dogs are good  at that.
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justagirl2325
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« Reply #78 on: May 08, 2017, 07:40:07 AM »

My husband is on that med too, it seems to work well for him.  His heart rate is normal where as before the resting rate was 115.  Those faints so just awful I'm glad you didn't injury yourself more seriously.  Take care
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Charlie B53
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« Reply #79 on: May 08, 2017, 04:58:09 PM »


I've had only a few 'faints'.  As I was losing so much fat weight my BP meds were working over-time.  When I bent over to pick up something I dropped, I would get giddy, light-headed.  I'd laugh it off, but there were three times I must have paused bent a couple of seconds too long. I remember getting light-headed, then I was on the ground.  I don't think I was ever 'out' more than the half-second it took to fall.

It is a surprise.  Fortunately I never hurt myself.  I don't count my Pride.  Broke that a long time ago.
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kickingandscreaming
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« Reply #80 on: May 08, 2017, 06:26:55 PM »

I'm back from surgery. Everything went well. Can't write much.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Charlie B53
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« Reply #81 on: May 08, 2017, 07:17:31 PM »


Very glad to  hear it.

I wasn't really holding my breath, but I was breathing very slowly.

Hopefully soon you will be back to speed, maybe with a governor to keep you from going too fast.
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LorinnPKD
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« Reply #82 on: May 09, 2017, 08:57:01 AM »

Glad you're back!  Hoping everything's going OK!
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Jean
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« Reply #83 on: May 09, 2017, 09:26:40 AM »


Glad you are done with that!!! On to feeling tons better!!
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One day at a time, thats all I can do.
Rerun
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Going through life tied to a chair!

« Reply #84 on: May 09, 2017, 09:28:45 AM »

 :flower;
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cassandra
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When all else fails run in circles, shout loudly

« Reply #85 on: May 09, 2017, 12:08:13 PM »

Well done girl!! Feel better soon.

   :flower;


Love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MooseMom
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« Reply #86 on: May 09, 2017, 12:41:58 PM »

Ahhhhhhhhhhhhhhhh....what a relief! :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
OldKritter
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« Reply #87 on: May 10, 2017, 09:56:05 AM »

Happy you are back, hope your recovery is swift
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MooseMom
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« Reply #88 on: May 10, 2017, 10:44:34 AM »

How are ya today?   :waving;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Whamo
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« Reply #89 on: July 30, 2018, 12:19:22 PM »

 :banghead;  I've been feeling great this year, but bumps in the road are starting to deflate my spirit.  This month I had three surgeries: skin cancer (barnacles on my lower leg, plastic surgery (lasttic skin on my wound), and a skin graft (so I'd heal in weeks instead of months).  I'm finally off the opiates for the pain and and can walk around without my thigh pulsing in pain.  But my neprho nurse wants me to take another urine bottle test because my clearance numbers are low.  I feel fine, so I think it's the test.  The doctor has said he might increase my fill volume and/or time.  Or I'd go back to he Moe.  I've gotten used to PD after six years.  I'm on/off the transplant list and it appears the artificial kidney won't happen for years due to development setbacks from blood clotting.  I'd try home he Moe but I hate needles and my wife is too busy as a nurse manager to spend time with me for it  What do other people do in this position?  What should I know to make a good decision?  Has anyone else ever gone through this?
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cassandra
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When all else fails run in circles, shout loudly

« Reply #90 on: July 30, 2018, 01:06:13 PM »

With me it was: getting really depressed after 5 years 'happy' PD, and 10 years in-centre hemo
                        Going mental of the desinterested staff
                        Getting tired of cleaning my chair and table.
                        Getting tired of being scared to get infiltrated by some kid, having to wait to get disconected,
                        Seeing fellow patients being treated even worse.
                        Seeing the cleaner going round with 1 bucket of water through the whole 4 rooms 15 beds clinic.
                        Reading that it is poss to D for years and that all longtermers (25+) D at home
                        Having to check if staff change their gloves
                        Discovering IHD.com
                        Discovering Nxtage
                        Really didn't want to go in (clinic) anymore


I really didn't see myself ever putting my own needles in. I couldn't look. But I started pulling my needles. And then I got furious with the fact that it is known that the hours you get in clinic are just to keep you alive. If you actually want to live, I'd have to start putting my needles in. Do home hemo. It's a lot of boxes, quite some work ordering. But I outlived most from my clinic (which makes me really upset cos I told them about Nxstage etc)


It would have been nice to have been healthy for the last 35 years, but it wasn't to be, but I'm mighty glad I'm still here, and I know that's because of home hemo. I'm so glad I made that desicion.


Good luck thinking Whamo, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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