I am 5 years post-tx, and have had an interesting ride. If I hadn't consented to the Biopsy of April 2012, I would not have such a story.The biopsy ended up damaging my kidney permanently (I received it on Nov 23, 2011). I had to have emergency surgery to save it from an obstrucing blood clot that took days to develop. I noticed it because I lost my urge to pee. I ended up in acute kidney failure w/a creatinine as high as 9.9. Since then, it settled into the low 3's, but just recently, it's been in the mid 2's.I had one other hospitalization 2 years ago due to chronic UTI. That was from taking a PPI med that made my tacorolimus levels go up. Other than those 2 things, and my most recent case of pneumonia, I have had no issues. All I do is take my meds twice a day, get labs as needed, and see my neph 3 times a year and my tx neph at least once a year, sometimes more. (the one who did the biopsy left my hospital in 2014 - the one who took over has never uttered the word 'biopsy' to me!). No depression meds, no cholesterol meds (just had that tested last week - total cholesterol is 145!), no bp meds at this time. My PTH is playing games with me, so we are keeping an eye on that. Otherwise, all has been good!KarenInWA
Thank you for mentioning this kidney biopsy, KarenInWa... I am very curious about kidney biopsies in the context of what do they actually provide and what are they good for? Are kidney-biopsies being taken to satisfy medical curiosity? Or are kidney-biopsies being taken in order to forward medical research? I wonder about this, because I was told many years ago by a medical Professor, that a kidney biopsy only aggravates a body that has already become oversensitive because of kidney issues ...Could the old saying "let sleeping dogs lie" be applicable in this case and suggest to avoid a kidney biopsy?Many thanks from Kristina.
I ask because i posted a video 7 months ago about my transplant journey and things that i wasn't told of that i experienced post transplant. Someone commented yesterday saying they know a few people who have had transplants and they are thriving. No depression post tx no med issues nothing. I find this very hard to believe. That with a life saving surgery and a copious amount of medication everything is sunshine and rainbows. I could be wrong and know everyones experience is different. But i honestly want to know have any of you here had no issues what so ever.
It is great to hear from those of you who have had successful transplants. I have a couple of follow up questions: How is your general health and energy level compared to when you were in the 15% range pre-dialysis? Is it better or the same? Do you still have the same level of anxiety with the monthly blood tests or does it lessen a bit over time? I'm just curious about quality of life pre vs. post transplant.