Happy to be here!

Hello! This is Vijay Singh, 34, male from Delhi, India. Was just going through the internet when I came across this forum. Went through a few threads and posts and instantly wanted to be a part of the site. Used to think I was the unluckiest person to have got diagnosed with CKD 5 about a year ago when my life had just started to stabilize on the professional / financial front. It really started off with nothing but a cough that just wouldnt go away. We went to a hospital and the doctor there prescribed a few tests (one of which was KFT). The reports were all fine except for the KFT which was literally all over the place and the doctor suggested a transplant / dialysis right away. I was very confident about a way around it and tried several alternate therapies(magnets) and Ayurvedic medicines and methodologies for about four odd months to no avail.

Eventually my deteriorating health finally pushed me to the bed and had to be rushed to the hospital one day in April 2016 on account of breathlessness, weakness, vomits, body-ache etc. I had already lost my appetite to the extent of not eating anything for almost three days straight before ending up in the hospital.

The doctors went through with a few tests and wasted no time in placing a catheter into my neck and started dialysis right away. My condition while in the hospital did not quite stabilize initially and my body decided to sink in further and I was told that I had developed ulcers in my liver and was also checked positive for Tuberculosis.

I lost quite a bit of body weight and strength during that phase. Lost 32 KGs in total(went from 74 kg to 42 kg) from the time of diagnosis to hospitalization in about 4 months. Was bedridden for a good 4 months and had lost all hope of recovery.

My family members really supported me and made sure that I was given the right treatment and required care which gradually helped me recover and come back to my feet in Sep 2016. Mulling over my condition, lost in my thoughts I one day realized that feeling low and down will not help anybody and I will have to be strong for myself and my family.

The rules here say that you can receive an organ from a family member only but to my hard luck, the blood groups of my father and my wife did not match for a transplant. The doctors did say that they could still go ahead with a transplant if the donor is of a different blood group but it will cost twice the amount of money as it did when the groups were same. The health policy I had rejected even the hospitalization bills saying that the claim could not be accepted for a kidney disease treatment due a pre-existing history of hypertension. Short of a matching donor and the money to have the tissues changed of different blood group, being dialysed twice a week was the only option I had.

No doubt watching the people I met at the dialysis center really helped as I found out that there are people who are going through worse and more and are still putting up a fight.

Came across children (age 9 / 10) and many other people from different age groups who refused to give up and give in and were trying hard to keep their head above the water and were doing a splendid job of it. Eventually I gained some strength and was back up on my feet around September 2016. Lost a lot in terms of financials(behind on loans/EMIs/card payments etc).

Got in touch with my professional links and got a job in mid October and have been trying to balance out office and dialysis ever since but thankfully have been successful in doing so.

Hope to be of some use to the forum in any ways possible and seek advice / answers to some of my doubts / questions along the way.

sp mod Cas