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thevijaysingh
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« on: January 08, 2017, 08:36:30 PM »

Hello! This is Vijay Singh, 34, male  from Delhi, India. Was just going through the internet when I came across this forum. Went through a few threads and posts and instantly wanted to be a part of the site. Used to think I was the unluckiest person to have got diagnosed with CKD 5 about a year ago when my life had just started to stabilize on the professional / financial front. It really started off with nothing but a cough that just wouldnt go away. We went to a hospital and the doctor there prescribed a few tests (one of which was KFT). The reports were all fine except for the KFT which was literally all over the place and the doctor suggested a transplant / dialysis right away. I was very confident about a way around it and tried several alternate therapies(magnets) and Ayurvedic medicines and methodologies for about four odd months to no avail.

Eventually my deteriorating health finally pushed me to the bed and had to be rushed to the hospital one day in April 2016 on account of breathlessness, weakness, vomits, body-ache etc. I had already lost my appetite to the extent of not eating anything for almost three days straight before ending up in the hospital.

The doctors went through with a few tests and wasted no time in placing a catheter into my neck and started dialysis right away. My condition while in the hospital did not quite stabilize initially and my body decided to sink in further and I was told that I had developed ulcers in my liver and was also checked positive for Tuberculosis.

I lost quite a bit of body weight and strength during that phase. Lost 32 KGs in total(went from 74 kg to 42 kg) from the time of diagnosis to hospitalization in about 4 months. Was bedridden for a good 4 months and had lost all hope of recovery.

My family members really supported me and made sure that I was given the right treatment and required care which gradually helped me recover and come back to my feet in Sep 2016. Mulling over my condition, lost in my thoughts I one day realized that feeling low and down will not help anybody and I will have to be strong for myself and my family.

The rules here say that you can receive an organ from a family member only but to my hard luck, the blood groups of my father and my wife did not match for a transplant. The doctors did say that they could still go ahead with a transplant if the donor is of a different blood group but it will cost twice the amount of money as it did when the groups were same. The health policy I had rejected even the hospitalization bills saying that the claim could not be accepted for a kidney disease treatment due a pre-existing history of hypertension. Short of a matching donor and the money to have the tissues changed of different blood group, being dialysed twice a week was the only option I had.

No doubt watching the people I met at the dialysis center really helped as I found out that there are people who are going through worse and more and are still putting up a fight.

Came across children (age 9 / 10) and many other people from different age groups who refused to give up and give in and were trying hard to keep their head above the water and were doing a splendid job of it. Eventually I gained some strength and was back up on my feet around September 2016. Lost a lot in terms of financials(behind on loans/EMIs/card payments etc).

Got in touch with my professional links and got a job in mid October and have been trying to balance out office and dialysis ever since but thankfully have been successful in doing so.

Hope to be of some use to the forum in any ways possible and seek advice / answers to some of my doubts / questions along the way.


   





sp mod Cas

 
« Last Edit: January 09, 2017, 05:35:24 AM by cassandra » Logged

Regards,
Vijay Singh
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« Reply #1 on: January 08, 2017, 09:33:27 PM »

 :welcomesign;  Welcome, Vijay! You will be among good company here. You will meet many others like yourself who are also strong-willed and doing what they can to enjoy life. Best of luck to you!
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Husband has ESRD with Type I Diabetes -Insulin Dependent.
I was his carepartner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
Charlie B53
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« Reply #2 on: January 09, 2017, 05:03:27 AM »


Welcome to IHD!

When the illness can it hit you with vengence.  I are fortunate to have survived.  You attitude adjustment is your major strength in helping you cope with the rigors of kidney disease.  Never give up.

We are fortunate that you found us and decided to join.  I hope IHD continues to help you in your journey.

Take Care,

Charlie B53
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cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: January 09, 2017, 05:36:37 AM »

Welcome to the site Vijay


   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
iolaire
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« Reply #4 on: January 09, 2017, 05:47:06 AM »

Welcome, I think you should find this site a good resource with lots of people who are moving forward with their lives on dialysis and others who are in rough patches and needing support from people who know what they are experiencing.
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I travel with my wife as a hobby and am on Dialysis, recent trips include Brussels.  We return to South Africa (Cape Town) in November 2016. I've also visited a few other US DaVita centers and have had good experiences.

I still owe a write-up for Montreal for October 2016.
kickingandscreaming
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« Reply #5 on: January 09, 2017, 06:42:37 AM »

Welcome Vijay.  Good to have to here, but sorry you have to be here.  You are fortunate to have a supportive family and work that you can still do.  I look forward to hearing more from you.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
DayaraLee
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« Reply #6 on: January 09, 2017, 07:24:57 PM »

Welcome, Vijay! You have certainly had your share of challenges with this disease, but it sounds like you're beginning to find your way to a better place. Speaking of better places... So glad you found IHD. As several others have said already, this is a very active community of folks who have traveled a similar path and share many common experiences. It's a terrific support system, and information is shared freely.
 :welcomesign;
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My husband is the one with CKD, but I'm who needs the coping strategies!
CKD Stage 3A, Diabetes Type II, Hypertensive, Stubborn...

"What is love? Love is the absence of judgment."  ~Dalai Lama
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