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« on: January 07, 2017, 04:53:27 PM »

I'm so grateful to have found this board. My husband,64, started dialysis four weeks ago while in the hospital. He has since been doing 3 days a week at our local center. I have so many questions and concerns . I'm happy to be here.
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« Reply #1 on: January 07, 2017, 05:33:34 PM »

Welcome, Audrey, to IHD.  You've got questions? We've got answers.  Or, at least, we'll try.

This forum is really important becuase most people "on the outside" of dialysis have no idea what your life is like on D.  Nor do they really want to know.

Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
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« Reply #2 on: January 07, 2017, 10:54:03 PM »

Audrey, so very glad you found IHD. I had a huge sense of relief (as a caregiver to a pre-dialysis patient) when I found this community. The members are unequaled - extensive knowledge, experience, openness, and support. I'm grateful for them every day.

My husband is the one with CKD, but I'm who needs the coping strategies!
CKD Stage 3A, Diabetes Type II, Hypertensive, Stubborn...

"What is love? Love is the absence of judgment."  ~Dalai Lama
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When all else fails run in circles, shout loudly

« Reply #3 on: January 08, 2017, 06:53:38 AM »

Welcome to the site Audrey


Take care, Cas

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
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« Reply #4 on: January 08, 2017, 07:37:30 AM »

Welcome, glad you found the site.  There are a good number of partners on the site so you should be able to get dialysis information and support from others who are living their life around the patient.

I travel with my wife as a hobby and am on Dialysis, recent trips include Brussels.  We return to South Africa (Cape Town) in November 2016. I've also visited a few other US DaVita centers and have had good experiences.

I still owe a write-up for Montreal for October 2016.
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« Reply #5 on: January 08, 2017, 12:02:56 PM »

Welcome, Audrey! Hope you find the answers you're looking for. This is a big site with a lot of very good information. My husband is in his late 50's and has been on dialysis 3 years. We've had to learn a lot and are still learning. One piece of advice I can give is try to keep a support system of people you can talk to, whether it be at home, the clinic or here. Not everyone (friends and family) understand what we are going thru and some seem to not want to understand but just know that is normal. We may not be able to control others feelings but we can control our own attitudes, if we want. So if you have some support from friends/family, that is great. Otherwise look to other areas where you can find support. By the way, this site can offer a lot of that!

Husband has ESRD with Type I Diabetes -Insulin Dependent.
I was his carepartner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
Charlie B53
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« Reply #6 on: January 08, 2017, 02:35:24 PM »

Welcome Audrey!

IHD is a great place to find information that isn't readily available elsewhere.  Our members are not only Dialysis Patients, we have many Caregivers that need information also.  Information isn't the only thing you will find here.  Often something may be bothering you and you will find that we are always willing to lend an ear.  It can be quite helpful to vent your anger and frustrations.  While not wanting to bother your Husband ranting about something, we gladly urge you to spell it out.  Get it out into the open.  You may find that your are not the only one that has ran into that brick wall.  Others may have had very similar experiences and are willing to tell you how they managed, what they tried to successfully overcome those feeling.

I am glad you are taking an active part in helping your Husband cope with the trials of Dialysis.

And I hope that he is doing much better now that he is receiving his treatment, getting that extra water and those toxins out of his system.

Check out the diet and Food section.  There is a lot of information about what we can and maybe shouldn't have so much of.  Learning to eat responsibly is vital to maintaining his health, and it never hurts 'normal' people to learn what may be far better for them as well.

Take Care,

Charlie B53
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