I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
April 24, 2017, 10:13:35 AM

Login with username, password and session length
Search:     Advanced search
511648 Posts in 31940 Topics by 11417 Members
Latest Member: kingkong1933
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  Introduce Yourself (Moderator: Rerun)
| | |-+  Hello, I'm new here
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Hello, I'm new here  (Read 550 times)
Michelle2016
Newbie
*
Offline Offline

Posts: 37

« on: November 22, 2016, 12:07:46 PM »

I am almost 60 yrs old now.  Blood type: O

I had my kidney tx almost 16 yrs ago. Now I have problem with my transplanted kidney. It's challenging, but different at this time. I have learned so much from the last 18 years since I had PD. I didn't tell my employer and co-workers about my health for last 18 years. I have heard some stories about bad employers.

When I had PD 18 years ago, there were not many information out there regarding PD, nutrition, exercises and tx at that time. I had no clue. I was panic. Now I'm empowered with knowledge, information, new drugs, new technology, and help from this website. I am sure everything is getting better than 18 years ago.   

I loved my PD, compared to HD. During those two years of PD, I didn't have any problems and I worked full time. I exercised regularly. I cleaned the cath site everyday. I didn't have infection. However, I had weakness of contolling my diets. I couldn't cut my salt intakes. I had bruises over my legs before the tx.

Right now, I just need to focus on what I can do and do my best instead of worries.
« Last Edit: November 23, 2016, 12:28:35 AM by Michelle2016 » Logged
MooseMom
Premium Member
Member for Life
*
Offline Offline

Gender: Female
Posts: 9682


« Reply #1 on: November 22, 2016, 03:15:26 PM »

Welcome to our community.  You obviously have a lot of information to share about both transplantation and PD.

It is hard not to worry.  Under the circumstances, I'm not sure that is possible.  I hope your transplant still has life in it.  Do your doctors have a plan to try to extend its life?

Thank you for joining IHD!
Logged

"Empathy is the soul of democracy."  Jeremy Rifkin
Michelle2016
Newbie
*
Offline Offline

Posts: 37

« Reply #2 on: November 22, 2016, 04:02:07 PM »

Hi, MooseMom: thank you for your kind words. It's hard not to worry. I have had too much worries in last 20-40 years because of the kidney disease. I wasted so many years on worries. But I am still here. That's why I am determined trying not to worry, but appreciate every moment, and do my best.

Take care.
Logged
Simon Dog
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2050


« Reply #3 on: November 22, 2016, 04:20:54 PM »

Quote
Right now, I just need to focus on what I can do and do my best instead of worries.
Let Alfred E. Neuman be your role model.
Logged
Charlie B53
Global Moderator
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2179


« Reply #4 on: November 22, 2016, 06:16:57 PM »


Not sure if it's 'Welcome' or 'Welcome Back', in either case we are glad to have your contributions.

I wasn't sure if I am supposed to be worried.  On PD a little over 3 1/2 years already and doing well according to my labs and my Dialysis Team.

Other than the general weakness and feeling tired all the time, I am NOT sick or swollen any longer.  I think that alone is great!

Not a candidate for tx due to other issues I hope to stay just like this for a very long time.
Logged
Michelle2016
Newbie
*
Offline Offline

Posts: 37

« Reply #5 on: November 23, 2016, 12:48:11 AM »

Hi, Charlie:  thank you for sharing your experience. It's very encouraging. I am trying to collect more information on PD while work full time.  I also found out that it's possible to swimming in the pool with paediatric colostomy pouches. It costs about $1.5 per piece for the pouch.  I do like exercises such as weight lifting, biking, and swimming. It's my lifeline.

Best wishes. 
Logged
SooMK
Premium Member
Full Member
*
Offline Offline

Gender: Female
Posts: 372


« Reply #6 on: November 23, 2016, 05:15:32 AM »

Welcome Michelle!
Logged

SooMK
Diagnosed FJHN/UKD 2009
Transplant April 2014
Charlie B53
Global Moderator
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2179


« Reply #7 on: November 23, 2016, 07:11:56 AM »


I never thought about using a colostomy pouche to keep my PD cath dry.  That is a great idea.   My problem is the position.  My cath is tunneled and exits left of center, midway and on a level with the nipple.   Sort of an awkward position to wear some sort of strap as it would be right around my arm pits.  Not really comfortable.

I haven't looked very hard, but have been thinking about un-lubed condoms. Hoping I will run across some large enough to stuff the cath inside then tape and/ rubber cement the works to me.

Until then no swimming.  I carefully wrap it with Press n' Seal to keep it dry in the shower.   PITA.
Logged
Michelle2016
Newbie
*
Offline Offline

Posts: 37

« Reply #8 on: November 23, 2016, 08:18:12 AM »

Hi, SooMK: thank you for your kindness.

Take care.
Logged
kickingandscreaming
Premium Member
Elite Member
*
Offline Offline

Gender: Female
Posts: 1544


« Reply #9 on: November 23, 2016, 10:42:30 AM »

Quote
I carefully wrap it with Press n' Seal to keep it dry in the shower.

I was instructed by my PD nurse to leave my catheter out in the shower and to allow the water to wash over it.  So far, so good.  Of course, I don't have a dressing on it in the shower.
Logged

Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Michelle2016
Newbie
*
Offline Offline

Posts: 37

« Reply #10 on: November 26, 2016, 09:00:11 AM »

Yeah, you are right. I had no problem with it.
Logged
Simon Dog
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2050


« Reply #11 on: November 26, 2016, 09:30:09 AM »

I left it out as well,  but I used one of those PD belts to keep it from flopping around in the shower and hung the belt up next to the towel when done.   Never had an infection in my glorious 6 months of PD.
Logged
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 5890


« Reply #12 on: November 26, 2016, 03:38:07 PM »

 Welcome to IHD Michelle, we are glad to have you and your mountains of information. Every little bit helps     :welcomesign;
Logged

One day at a time, thats all I can do.
cassandra
Global Moderator/Premium Member
Elite Member
*
Offline Offline

Gender: Female
Posts: 3857


When all else fails run in circles, shout loudly

« Reply #13 on: November 27, 2016, 07:11:43 AM »

Welcome to the site Michelle2016


    :welcomesign;

Take care, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Vt Big Rig
Global Moderator/Premium Member
Full Member
*
Offline Offline

Gender: Male
Posts: 467

« Reply #14 on: November 27, 2016, 11:41:42 AM »

Welcome to the site.  Sorry you are back amoung us. But glad you found the site.
Logged

VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
DayaraLee
Premium Member
Full Member
*
Offline Offline

Gender: Female
Posts: 237


« Reply #15 on: November 27, 2016, 07:51:39 PM »

I seem to be the professional worrier in my family, and it's definitely something I'd like to be a little less good at! I cheer you in your effort to set as much of that aside as possible. Welcome, Michelle2016!
 :welcomesign;
Logged

My husband is the one with CKD, but I'm who needs the coping strategies!
CKD Stage 3A, Diabetes Type II, Hypertensive, Stubborn...

"What is love? Love is the absence of judgment."  ~Dalai Lama
Rerun
Administrator/Owner
Member for Life
*****
Offline Offline

Gender: Female
Posts: 11734


Going through life tied to a chair!

« Reply #16 on: November 28, 2016, 11:46:46 AM »

  :clap;   You made it on the board.  I'm so glad.  Welcome.

 :welcomesign;
Logged

Michelle2016
Newbie
*
Offline Offline

Posts: 37

« Reply #17 on: December 02, 2016, 05:15:21 AM »

Thank you all for your kindness of greeting. Honestly, I was afraid to talk or discuss about dialysis before. However, over the time I learned that I have to accept the reality. I have learned and empowered by coming on this website just for last few weeks. I enjoy reading all your stories and and nice encouraging advices given. The more I learn and discuss, the better I deal with it. In addition, I can help others to learn about dialysis and tx. I am glad that there options such as PD, HD, and tx for us to have a 'normal' life for many many years.

Before, I do worry a lot about everything. Now I am too busy getting on with my life (such as exercising, making healthy and tasting food, being relax, surfing on Internet, and working full time) to worry. I wish I could have 30 hours a day instead of 24 hours. Because I don't have time to watch TV!
Logged
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.5 | SMF © 2013, Simple Machines
Enotify by CreateAForum.com
Valid XHTML 1.0! Valid CSS!