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Author Topic: Horrible week, hope light at end of tunnel ain't a train.  (Read 8192 times)
Michael Murphy
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« on: November 08, 2016, 06:59:34 PM »

Bad two weeks, thought I was having a bad asthma attack went to my medical groups urgent care center and on 10/29 was sent to the hospital with a heart attack.  Was sent to the Cath lab and stented. Next day found out I was being sent to another hospital for a high risk additional stenting.
Before I left I stopped breathing during a 8 foot walk to the toilet.  Not so good but I was told that the next stent should take care of this problem.  Every thing went well until they told me my ejection fraction was under 20%.  But it should improve during the next  three to six months.  However the breathing problem still reoccurred.   I was xrayed and checked by my nephrologist I was retaining fluid and starting on Wednesday I had 4 kilos pulled at wed, Fri, Sat( extra session) and Monday's session.  I had been losing weight and seem to stop a couple of weeks ago, it appears that I lost weight but retained fluid. Bummer.
Strangely after this on the way to my car I had a breathing episode PM, could not get air in, sweating and dizzy.  Once again on to urgent care no one has any idea what's going on.  The doctor working thankfully was a careing bright young doctor who worked his butt off trying to get me a hospital bed.  But I hadn't eaten all day and it was around 5:00 PM.   So I told the nurse is was leaving AMA.  No one was happy so I got up and began to leave.  That's when the third breathing failure occurred.  As I watched the heart monitor the display  began to behave bizarrely for about 3 minutes.couldnt breath when suddenly the monitor reverted to what it was like before the weirdness and I suddenly could breath.  Doctor comes to convince me to stay,   I readily agreed,that meltdown scared the spit out of me.  As the doctor left a nurse came in and as I headed to the bed it occurred again, nurse hit alarm and print function.  Doctor came back and began to order paddles attached to me, I was telling him it would stop soon since I had just seen a demo of this and as quickly as it started it stopped.  I was going into vacation  and miraculously a bed opted up in the CCU.  Now tomorrow I am being transferred to another hospital to have a defilberator installed.  Then another week of therapy for Afib. 
All I can think of is how lucky I was to get a doctor that fought for me all afternoon, and how lucky i was for being a a...ole about leaving AMA and provoking the VTac episode that explained all my problems.  This is why I think being nice counts, you need. All the karma you can get.





sp mod Cas
« Last Edit: November 09, 2016, 08:35:37 AM by cassandra » Logged
kickingandscreaming
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« Reply #1 on: November 08, 2016, 08:35:53 PM »

Oh, Michael.  Life is so fragile.  What a scary series of incidents.You have been through the mill and I'm happy that you are in a better place with this. Please take care of yourself and accept the care available to you.  Rooting for you.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Simon Dog
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« Reply #2 on: November 08, 2016, 10:38:01 PM »

Michael - best wishes for a good recovery and stents that behave nicely.
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SooMK
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« Reply #3 on: November 09, 2016, 04:30:38 AM »

Hope you're on the mend soon. So frightening.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Charlie B53
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« Reply #4 on: November 09, 2016, 05:46:35 AM »


Very fortunate that you sought help, recognizing a potentially fatal problem.   Far too many refuse to admit they need help and stay home.  Many of those don't make it too the hospital in time later. 

Your increased mental irritation very well could have contributed to the onset of episodes.  Having one while wired makes diagnosis far quicker.

Hopefully a pacemaker will smooth this out.  But I am still very curious as to why this began, what causes this to occur, what can be done to correct the root cause as a pacemaker only treats individual episodes.

We still have so much to learn.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #5 on: November 09, 2016, 08:38:56 AM »

Best wishes and healing vibes Michael. Man that must have been scary.


      :flower;


Love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
LorinnPKD
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« Reply #6 on: November 09, 2016, 10:56:27 AM »

Wow, that sounds really scary.  I can't even imagine.

Sending you best wishes and strength.
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Rerun
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Going through life tied to a chair!

« Reply #7 on: November 09, 2016, 11:33:04 AM »

Best Wishes for a speedy recovery.

       :flower;
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PrimeTimer
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« Reply #8 on: November 09, 2016, 04:18:41 PM »

Michael, sorry to hear this happened. I wish you the 3 "R's": Rest, Relaxation & Recovery. You are a survivor. I pray the surgery is a success and that you're back on your feet again soon. Take care!   
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
DayaraLee
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« Reply #9 on: November 09, 2016, 06:12:12 PM »

Michael, best wishes for a rapid and smooth recovery! Very scary and perilous situation you were in there... Glad you stuck it out with the good doctor and your troubles were diagnosed.
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Husband Dx - CKD Stage 3, Diabetes Type II, Hypertensive, Stubborn...

"What is love? Love is the absence of judgment."  ~Dalai Lama
Jean
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« Reply #10 on: November 09, 2016, 09:59:55 PM »

Michael, you must have been terrified. Good for you in taking the lead with the Dr. Sometimes you really need to do that. So, now, praying for a recovery for you. Take it easy and stick to your knitting, or your coloring book.
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One day at a time, thats all I can do.
Michael Murphy
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« Reply #11 on: November 11, 2016, 02:31:53 AM »

After a 7.5 hour surgery yesterday, I am now equipped with a shiny new defriberlator in my chest. Interestingly as a hemo patient you get one different then the regular one, no leads and installed to isolate from your fistula.  Now a vtac episode really would be shocking.  It seems funny how dialysis effects things you would not expect it to.  Today is a dialysis day and they are coming to do it at my bed in the hospital another 4 kilo session.  The good nes is only 3 tomths OF these to Go.As doon as a echocardigram shown may ejection fraction (the amount OF blood the Heart moved per Beat)  is more normal ( currently 20%) used to be 59%,  they will start going back to munusual 1.8 kilo sessions.  So very happy today. I don't know what will eventually kill me but I now now it won't be a heart arythmia.
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kickingandscreaming
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« Reply #12 on: November 11, 2016, 02:36:13 AM »

Glad you got through this and have one less thing to worry about.  Speedy recovery to you.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Athena
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« Reply #13 on: November 11, 2016, 06:25:25 AM »

Michael, I am so sorry to hear all of this and wish you a speedy recovery. I am so glad you fought for better medical attention and so pleased that kind, hardworking doctor fought for you as well.
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Find Cure for CKD now! Please like my facebook page of the same name. Thank you.
Charlie B53
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« Reply #14 on: November 11, 2016, 06:52:51 AM »


I am very glad to see you have managed to retain some sense of humor.   It may take a little bit to get you through healing enough to get out of there.

7.5 hours?   WOW  That's a long time, or at least it seems so to those sitting awaiting word of your progress.

Very glad to hear  you are on the mend.  Flirt with the Nurses, they love it.
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iolaire
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« Reply #15 on: November 11, 2016, 06:55:35 AM »

After a 7.5 hour surgery yesterday, I am now equipped with a shiny new defriberlator in my chest.

Amazing where medical technology is today... Good luck.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
MooseMom
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« Reply #16 on: November 11, 2016, 07:11:51 AM »

It would never have occurred to me that a dialysis patient would get a different kind of defibrillator, but I can see the logic in it.

We are all relieved to hear that you are now healing and have new tech in your chest!!  LOL!  Take care of yourself, and keep us updated on your progress.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Blake nighsonger
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« Reply #17 on: November 11, 2016, 08:53:00 AM »

Micheal, that's interesting about no leads to your heart ,wounder how that works? take it easy.   
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Kathymac2
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« Reply #18 on: November 11, 2016, 10:01:43 AM »

Hi Michael,

I'm glad your surgery is over and it sounds like things went well. Wishing you a comfortable and speedy recovery. 

Kathy

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Charlie B53
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« Reply #19 on: November 11, 2016, 10:10:22 AM »


I wanna know how do you change the batteries?

Or do you have to stick your finger in the wall outlet once in a while to re-charge?
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Xplantdad
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Health is not valued till sickness comes. T.Fuller

« Reply #20 on: November 11, 2016, 11:14:31 AM »

I hope you are feeling better Michael!  :thumbup;

One of the folks at the clinic where my daughter used to go had something similar implanted, maybe you have the same thing?

Check it out here: http://www.bostonscientific.com/en-US/products/defibrillators/emblem-s-icd-system.html

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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
PrimeTimer
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« Reply #21 on: November 16, 2016, 01:14:38 PM »

Glad you are feeling better. I may not agree with your politics (ha ha) but glad you are feeling a little back to your old self again enough to be complaining about Repubs. I wish you a full recovery.  :)
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
MooseMom
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« Reply #22 on: November 16, 2016, 01:18:22 PM »

Glad you are feeling better. I may not agree with your politics (ha ha) but glad you are feeling a little back to your old self again enough to be complaining about Repubs. I wish you a full recovery.  :)

 :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly

« Reply #23 on: November 17, 2016, 09:40:34 AM »

Glad to hear your news


   :flower;



Luck, love and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Michael Murphy
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« Reply #24 on: November 17, 2016, 04:41:32 PM »

Recharge is in the 6 month tune ups  I have to attend, new programming and a 6 mont recharge are included in the tune up.
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