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Author Topic: And than there were none  (Read 3529 times)
cassandra
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When all else fails run in circles, shout loudly

« on: September 08, 2016, 08:19:45 AM »

So my cycler alarmed on 71. Don't remember seeing that before. Was during prime. So I just pressed it away, pressed 'play' and looked it up. Aha needs PM (product maintenance) call Tech support and expect the same as with PM on Pureflow to have a kind of conductivity test to be done or something. But no. Need a new cycler. Arranged with the distributor for today after morning D, as I have to do bloods. Some guys in a white van come to pick it up.
I ask where my new machine is (I'm really hoping for a System One Plus), but they don't know about that.

So I call the distributor, where is it? They've lost it  ::). Really? After a few hours I get called back : do I need it soon? And tings.
So I might have it tomorrow morning or otherwise tomorrow evening, depending on traffic.

Weird or what?

Love to all, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
KatieV
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« Reply #1 on: September 08, 2016, 08:54:00 AM »

So I call the distributor, where is it? They've lost it  ::). Really? After a few hours I get called back : do I need it soon? And tings.
So I might have it tomorrow morning or otherwise tomorrow evening, depending on traffic.

What did you say to that?  I think I'd be speechless!

When I got my first supply shipment, we were told to expect about 35 boxes.  Only 4 showed up!  The others got lost - never heard exactly why, but the rest of them were delivered later in the week.
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~~~~~~~~~~~~
March 2007 - Brother diagnosed with ESRD, started dialysis 3 days later
April 2007 - Myself and sister also diagnosed with Senior-Loken Syndrome (Juvenile Nephronophthisis and Retintis Pigmentosa)

Since then, I've tried PD three times unsuccessfully, done In-Center hemo, NxStage short daily, Nocturnal NxStage, and had two transplants.  Currently doing NxStage short daily while waiting for a third transplant.

Married Sept. 2011 to my wonderful husband, James, who jumped into NxStage training only 51 days after our wedding!
~~~~~~~~~~~~
cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: September 08, 2016, 10:18:24 AM »


What did you say to that?  I think I'd be speechless!


I wás, than I asked if she was joking. I informed the hospital, and apparently they are supposed to have them in stock.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #3 on: September 08, 2016, 03:11:45 PM »

Hope they overnite you a new cycler! NxStage doesn't always use medical supply couriers to deliver and I wish they had. One delivery guy thought he was delivering venitian blinds to us. Another guy practically dropped a new cycler on our living room floor. It wasn't in a box. He carried it in and just sort of let it drop down on the floor. He had no idea that it was a lifesaving machine. After that I began to try to "educate" every delivery person about dialysis and what it was they were delivering (supplies, cyclers, etc..). BTW, when we got the 71 alarm for preventative maintenance, NxStage told me the cycler could still be used indefinitely until we were ready to have it exchanged. You might ask them about that but apparently it doesn't necessarily shut down, the 71 is merely a yellow caution warning reminding you that PM should be performed. I wish I had known this because maybe I would have been able to schedule the exchange for a more convenient date.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Xplantdad
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Health is not valued till sickness comes. T.Fuller

« Reply #4 on: September 08, 2016, 07:09:50 PM »

Other than the one time that UPS missed delivery to the medical courier...the other three times we had a new NXStage cycler within 24 hours...the last one in 5 hours...as they had one in a warehouse in downtown Phoenix!

Hope they get yours straightened out ASAP
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
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