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Author Topic: AT LAST!!! (Epoman must be laughing)  (Read 6191 times)
Meinuk
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« on: January 14, 2014, 08:26:41 AM »
Eight years ago Epoman started IHD after he was having trouble on DaVita's boards (censorship, heavy moderation) IHD gave him (and us) the freedom to say what we want bluntly, without censorship.  Members have battled, loved, cried and laughed over the years, and IHD has always been a free place to vent when needed.  Also, we were rebels....

Imagine my shock when I say IHD listed on Davita's website as a PATIENT RESOURCE.  EPOMAN and Susie, I hope that you are smiling down on all of this, because to me, it is a WIN for patient rights, and accessability for blunt, unedited information by patients for patients.  I can attest that IHD changed my life.

So here it is, the official DaVITA promotion of IHD.  I am still shaking my head.  WOW.

http://www.davita.com/kidney-disease/overview/living-with-ckd/support-groups-for-people-living-with-kidney-disease/e/4926

■I Hate Dialysis.com - This site is “for patients by patients.” The intro on the home page says, “Do not let the site’s name fool you, we are not about being negative, we just hate dialysis.” This online community desires to be supportive and help its members deal with the struggles of kidney disease.
« Last Edit: January 14, 2014, 08:28:36 AM by Meinuk » Logged
Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
MooseMom
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« Reply #1 on: January 14, 2014, 09:05:17 AM »
Congratulations to EVERYONE who has made this website into a real community. 

Thanks, Meinuk, for this wonderful news.  It is indeed a victory!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
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Going through life tied to a chair!
« Reply #2 on: January 14, 2014, 09:13:14 AM »
Which you do'en over dair?   >:(   LOL

Good to know.  I wonder if Epoman would return the favor? Probably NOT!

Rerun    >:D 

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Jean
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« Reply #3 on: January 14, 2014, 12:03:31 PM »
Now THAT is cool!!!
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One day at a time, thats all I can do.
Poppylicious
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WWW
« Reply #4 on: January 14, 2014, 12:43:35 PM »
 :2thumbsup;
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
thegrammalady
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« Reply #5 on: January 14, 2014, 02:21:32 PM »
Hooray for "our" side. Epoman would indeed have a good laugh.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
cattlekid
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« Reply #6 on: January 14, 2014, 07:24:44 PM »
I agree 100% that IHD changed my life. I would have never known about dual-listing or NxStage without IHD. 
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: January 15, 2014, 03:01:53 AM »
That's pretty amazing - we've come a long way baby!!  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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My two beautifull granddaughters

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« Reply #8 on: January 15, 2014, 04:49:08 AM »
 :rofl; :rofl; :rofl;

I can hear the chuckling!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
RichardMEL
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« Reply #9 on: January 19, 2014, 05:54:49 PM »
Wow.. that's fantastic!! amazing that it finally happened....
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
galvo
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« Reply #10 on: January 19, 2014, 07:03:26 PM »
 :2thumbsup;
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Galvo
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« Reply #11 on: January 19, 2014, 07:53:41 PM »
Awesome. Thanks for sharing this Meinuk.  :thumbup;
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paris
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« Reply #12 on: January 19, 2014, 08:46:07 PM »
Amazing!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #13 on: February 07, 2014, 08:48:11 PM »
I just bet Epoman rolled over laughing!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kitkatz
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« Reply #14 on: November 18, 2015, 10:13:48 PM »
We are no longer listed on the Davita site.  However one of our trusted partners RSN is listed.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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