I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
April 25, 2024, 05:52:35 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Transplant Discussion
| | |-+  Transplant drugs		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Transplant drugs  (Read 3598 times)
Bluebutterfly
Newbie
*
Offline Offline

Gender: Female
Posts: 12
« on: August 06, 2016, 12:30:32 PM »
When I had transplant 25 years ago my immune was basically zero
I got pneumonia so bad I was intubated for a month
My heart stopped, chest tubes galore, etc.  is it still
This bad?!
Logged
sahern
Jr. Member
**
Offline Offline

Gender: Male
Posts: 84


Frozen in Alaska
« Reply #1 on: August 06, 2016, 06:59:30 PM »
I had my transplant over twenty one years ago and now that I need another one I was told that only one of the rejection drugs would be different.
Logged
DialysisGoneFOREVER
Full Member
***
Offline Offline

Posts: 197
« Reply #2 on: August 06, 2016, 09:07:32 PM »
Quote from: sahern on August 06, 2016, 06:59:30 PM
I had my transplant over twenty one years ago and now that I need another one I was told that only one of the rejection drugs would be different.

What drugs are you on now and which one will be different?
Logged
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #3 on: August 06, 2016, 11:50:38 PM »
Quote from: Bluebutterfly on August 06, 2016, 12:30:32 PM
When I had transplant 25 years ago my immune was basically zero
I got pneumonia so bad I was intubated for a month
My heart stopped, chest tubes galore, etc.  is it still
This bad?!
I do not know what medications you were on, but were they the new non steroidal type? There are other drugs that help with anti rejection also that are meant for other things. I had my tx 15 years ago and things have changed at my center, but each center is different in their drug protocol.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
SooMK
Sr. Member
****
Offline Offline

Gender: Female
Posts: 610
« Reply #4 on: August 07, 2016, 04:55:23 AM »
I don't know how doctors determine what transplant meds each patient gets. My transplant was a little over two years ago. I'm on Myfortic and tacrolimus, no steroids. For me, the side effects are only a few and not serious, short term. There is of course, all the usual impaired immune system side effects or risks long term.
Logged
SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
coravh
Full Member
***
Offline Offline

Gender: Female
Posts: 221
« Reply #5 on: August 07, 2016, 05:06:13 AM »
Quote from: Bluebutterfly on August 06, 2016, 12:30:32 PM
When I had transplant 25 years ago my immune was basically zero
I got pneumonia so bad I was intubated for a month
My heart stopped, chest tubes galore, etc.  is it still
This bad?!


I got my kidney in '02. Over the years I've been on a variety of meds (changes for different reasons). I've been on Cellcept, rapamune, Imuran, Prograf, Myfortic but never prednisone. The only time I've gotten into trouble with infection was when I had CMV and was hospitalized for quite a while. Otherwise, I've gotten through everything that's been thrown at me, including pneumonia, a massive post op infection (due to other issues, and not the drugs), and a bunch of surgeries that went quite well but were scary.

Part of what can happenn is sometimes just bad luck.
Logged
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!