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KBC300
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« on: July 06, 2016, 06:50:16 PM »

I've been a Type 1 diabetic for 38 years, and am currently 51 years old. My creatnine had been relatively stable for years ( 1.3 - 1.6), but in September of 2015, it suddenly jumped to 2.7.  My kidney biopsy showed inflammation and diabetic scarring.  My creatnine is now fluctuating between 3.2 and 3.8. My potassium and phosphorous are still in normal range right now, and I've begun taking procrit shots for anemia.   I currently feel well, even though my GFR is around 14 - 15%.  I will be going for my first visit for transplant evaluation next Wednesday.   If I have to start dialysis before I can get a transplant, I have chosen PD, as I am a high school teacher and have 2 more years till I can retire.  I have been visiting this site for a while now, and have found it to be quite helpful!
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KBC300😽
Zach
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"Still crazy after all these years."

« Reply #1 on: July 06, 2016, 07:20:00 PM »

It's real good to have you here.
Thanks for joining our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Michael Murphy
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« Reply #2 on: July 06, 2016, 08:14:46 PM »

Welcome, I hope you get your two years dialysis free, however I started while working and worked for two years before I pulled the pin and retired.  Retirement is wonderful, I only wish I could have retired at 20 when I really could have enjoyed it.
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DayaraLee
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« Reply #3 on: July 06, 2016, 08:27:25 PM »

Hello, KBC! This is a great community with very supportive and knowledgeable people. I do a lot of reading and not much talking, but wanted to extend a very warm :welcomesign; .
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My husband is the one with CKD, but I'm who needs the coping strategies!
CKD Stage 3A, Diabetes Type II, Hypertensive, Stubborn...

"What is love? Love is the absence of judgment."  ~Dalai Lama
Simon Dog
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« Reply #4 on: July 07, 2016, 05:06:18 AM »

Don't give up on making it to full retirement.   I worked 3 years after starting (including a stint of in-center hemo) and only retired when I was told to come back full time or take a package (and "full time" meant 50/week + on call nights and weekends in that job); plus I was financially ready.   If I was not, I would have pushed and worked the full time +.    It is possible to work when on PD or HD.
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SooMK
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« Reply #5 on: July 07, 2016, 05:08:14 AM »

Welcome KBC!
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SooMK
Diagnosed FJHN/UKD 2009
Transplant April 2014
cassandra
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When all else fails run in circles, shout loudly

« Reply #6 on: July 07, 2016, 01:10:32 PM »

Welcome to the site KBC300

     :welcomesign;



Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Charlie B53
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« Reply #7 on: July 08, 2016, 06:45:31 AM »


Welcome to IHD.   You will find loads of free information here.   And it is a great place to ask questions, vent frustrations, or just pass the time.

I am surprised to learn the Dr's could determine the cause of kidney scar tissue.   All they told me is my kidneys are majorly scarred.  There is no hope of ever regaining function.   No word on what caused it.   So I am surprised and have to wonder what the difference is in scar tissue?    I may be the scientist parts of my that likes to take everything apart just to see what and how it works.  Or is that the little curious boy?
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supertramp1228
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« Reply #8 on: July 30, 2016, 02:59:13 AM »

hello KBC300.im new here too and welcome to this great community.im a china man and this is where i improve my English communication levels.
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There is only one perfect road,it is ahead of u,always ahead of u.
myporkchop
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« Reply #9 on: August 26, 2016, 05:50:36 AM »

Hi from nz and welcome this site is amazing x
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21st April 2016 - mum got told she had only a few months to live. Doctor's did not support dialysis treatment for her due to many other health complications. They didn't think she could cope and recommended conservative care. Our family was devastated. She is only 64 years old.

19th June 2016 - joined IHD. The support from all of you gave my mum the confidence to give dialysis a go.
26th September 2016 - started PD dialysis at home (CAPD). The first week has wrecked havoc with her blood sugar levels and diabetes, she has been in hospital twice within the week. Dialysis is going well though.
kickingandscreaming
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« Reply #10 on: August 26, 2016, 06:35:36 AM »

Welcome to IHD.  Sorry you have to be here.  You may surprise yourself and stay stable at these levels for quite a while (years, possibly).  I hope you can.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
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