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Author Topic: howdy!  (Read 2574 times)
isthisforreal?
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« on: July 02, 2016, 01:57:01 PM »

I'm new here...I've been on dialysis for about 11 months, the last 3 of which have been at home (using NxStage).  My kidneys failed because of long-term use of Avastin, a targeted cancer therapy.  Avastin is a wonderful drug but it causes kidney damage in about 4% of users.  I've been living with stage IV colon cancer for 7-1/2 years, and stage III 5 years before that (diagnosed at age 40).  I used to think I'd rather be dead that be on dialysis but once I started dialyzing I felt so much better that I changed my way of thinking.  I'm grateful so many of you are sharing your wisdom and experience on this message board.
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kickingandscreaming
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« Reply #1 on: July 02, 2016, 02:59:42 PM »

Welcome to IHD.  It sounds like you're a pro and have had many challenges to meet.  I hope dialysis continues being a positive experience for you.  I'm still debating with myself about the "I'd rather be dead" part. This is a great place to be for a peer to peer point of view.  Best to you.  K&S
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
isthisforreal?
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« Reply #2 on: July 02, 2016, 03:24:51 PM »

Thanks, kickingandscreaming!
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cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: July 02, 2016, 03:39:58 PM »

Welcome to the site ITFR

    :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Vt Big Rig
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« Reply #4 on: July 07, 2016, 05:43:32 AM »

Welcome to the site ..... :welcomesign;
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
DayaraLee
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« Reply #5 on: July 07, 2016, 07:20:15 AM »

This is a great place to share experiences, ask your own and answer others' questions, and get positive and strong support. I do a ton of 'listening' and soaking up information.   :welcomesign;
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Husband Dx - CKD Stage 3, Diabetes Type II, Hypertensive, Stubborn...

"What is love? Love is the absence of judgment."  ~Dalai Lama
Charlie B53
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« Reply #6 on: July 08, 2016, 06:50:32 AM »


Welcome to IHD.  I have to admit, my being needle-phobic and all, that you being still so new to dialysis and on the Nxstage at home I am impressed.   It takes a lot of determination that I'm not so sure that I have to do that.   You are setting a fine example for many to come.  Keep it up.

Take Care,

Charlie B53
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supertramp1228
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« Reply #7 on: July 30, 2016, 02:05:34 AM »

@isthisforreal?.i lived in mainland china and i never heard about Nxstage.that is wonderful .means u dont need to go to hospital regularly 3 time a week isnt it?i wish i cant get treatment like that.keep fight mate,wish u all the best.
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There is only one perfect road,it is ahead of u,always ahead of u.
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