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ckaluza
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« on: June 27, 2016, 07:41:26 PM »

I have FSGS which seems to be familial.  I limped along for 8 years with immunosuppressents, steroids, Lasix and antihypertensives but started peritoneal dialysis 2 years ago.  The neurological changes were driving me nuts...not that I had far to go.  I am dramatically healthier today than I was two years ago even though my labs remain crummy.  Waiting my turn for a kidney and am 0 for 6 on potential donors.

Working hard at enjoying life and retirement but I will admit that dialysis sucks.  Still fishing and travelling some but with the restrictions of dialysis.  Writing helps on the days that are not so good as it gives me a place to escape to when the rheumatoid arthritis flares up.  Ever thank full for the support of my bride of 44 years.

Charlie
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PrimeTimer
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« Reply #1 on: June 27, 2016, 09:03:59 PM »

 :welcomesign;  Welcome to the site, ckaluza! You've come to the right place. You'll get plenty of support here, we all need it time to time. Ups/downs and a whole lot of info shared here. And I agree, writing does help.
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Husband has ESRD with Type I Diabetes -Insulin Dependent.
I was his carepartner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: June 28, 2016, 03:03:35 AM »

Welcome to the site Charlie

     :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
iolaire
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« Reply #3 on: June 28, 2016, 12:09:10 PM »

Welcome, I'm glad you are still able to travel!  The forum has a nice section on travel from RV's and dialysis to global incase you are looking for ideas.
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I travel with my wife as a hobby and am on Dialysis, recent trips include Brussels.  We return to South Africa (Cape Town) in November 2016. I've also visited a few other US DaVita centers and have had good experiences.

I still owe a write-up for Montreal for October 2016.
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