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Author Topic: And the b###%r hits the fan  (Read 5266 times)
cassandra
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When all else fails run in circles, shout loudly
« on: June 13, 2016, 11:58:30 AM »
So yesterday bit of a pain in my fistula arm. One of the unused buttonholes looked a bit red too. After D this morning I rang the nurse, he said to come in, but I had no transport. I asked if I could go to a unit nearby, but no a Doctor must see my arm, so an antibiotic could be prescribed.
So I said: how about I make some pictures of my arm, mail them to you, and than the doc can write a prescription.
I did that (well, I asked a neighbour to take them, he stayed quite cool) sent them. Than a vascular nurse rang that I had to come in cause infected.
I go in by taxi (hosp sent it) ,and have to go for ultrasound to look for pockets with infection.
Conclusion: no pockets but 'some' thrombosis in fistula. And flow halved again to 250.
So a scan to look for veins in other arm. I had a fistula there when I was little, which was taken out after thrombosis. They found 1 vein which is deep, and far away from artery.
So I'll ring tomorrow to find out what the plan is.
And I am going to my best friends wedding in the Netherlands if D goes okay tomorrow.

Thanx for reading, and loving y'all a lot, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Hootie
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« Reply #1 on: June 13, 2016, 12:05:11 PM »
Sorry, for that setback. Wishing and hoping it will clear up. It is a difficult disease but you handle it so gracious and calm patience!

Thanks for all you do supporting others.
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Caregiver for wife with ESRD and type Type 1 diabetes (almost 50 years).  HHD with NxStage machine January 2015.
Transplanted  December 7, 2016
kickingandscreaming
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« Reply #2 on: June 13, 2016, 12:47:31 PM »
I'm not a hemo/fistula person, so I can't know the import of what you're describing.  But it sounds like something I wish you didn't have to go through.  I hope there's a simple solution to it. Fingers crossed.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: June 13, 2016, 01:10:02 PM »
Thank you all sweet people. Means a lot to me

     :cuddle;

Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kristina
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« Reply #4 on: June 13, 2016, 01:42:25 PM »
Hello Cassandra,
Thinking of you with fingers crossed
and good-luck-wishes from Kristina. :grouphug;

... And I do hope (fingers crossed again) you are well and can go to your best friends wedding in the Netherlands  ... :waving;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
hatedialysis2
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« Reply #5 on: June 13, 2016, 03:11:19 PM »
Thank goodness there is no infection!  But if it's thrombosis don't they clear that up with a angioplasty?
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Michael Murphy
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« Reply #6 on: June 13, 2016, 06:14:21 PM »
I hope the fistula is fine, I never thought I would care so much about weird bump on my arm, the thing is like a stupid friend, some times a pain but your life is better with it.  Hope yours is ok.
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PrimeTimer
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« Reply #7 on: June 13, 2016, 06:29:51 PM »
Sounds like you caught the problem in time to avoid a stay in the hospital. Tell them you've got a bed waiting for you in the Netherlands. If I remember correctly, that's where you're from so don't hesitate to tell them to hurry up and fix this thing because you need to get home and get on with the partying.  :beer1; 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Charlie B53
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« Reply #8 on: June 13, 2016, 06:37:59 PM »


If only you were made out of metal,  I could fix you.  I'm even O.K. with wood, and some plastics, but I HATE plastics.

That soft squishy stuff we are made of.  I'm powerless.    But not for the lack of want.

Praying all goes well quickly so not to interrupt your plans.

Take Care,

Charlie B53
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cassandra
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When all else fails run in circles, shout loudly
« Reply #9 on: June 14, 2016, 02:05:38 AM »
Thank you, thank you all sweet people.

      :thx;       :bow;

D going okay,nearly done. My bloods came back okay, white bloodcells fine but CRP definitely up, so I'm glad I went to hosp.

HD2 the problem with my fistula is that 'they' can't get in it anymore (stenosis a lot) but than again I've had it since '98, never was perfect, so it did well really.

Love y'all many, and will be reporting back from lovely Rotterdam

   
    :cheer:     :cheer:       :cheer:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Rerun
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Going through life tied to a chair!
« Reply #10 on: June 14, 2016, 03:34:50 AM »
So will you get a catheter shoved in your chest?  You need to dialyze some how? 
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iolaire
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« Reply #11 on: June 14, 2016, 05:39:31 AM »
Enjoy your vacation, I hope the arm worry settles down enough to be able to enjoy the trip.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
kristina
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« Reply #12 on: June 14, 2016, 05:52:02 AM »
Quote from: cassandra on June 14, 2016, 02:05:38 AM
Thank you, thank you all sweet people.

      :thx;       :bow;

D going okay,nearly done. My bloods came back okay, white bloodcells fine but CRP definitely up, so I'm glad I went to hosp.

HD2 the problem with my fistula is that 'they' can't get in it anymore (stenosis a lot) but than again I've had it since '98, never was perfect, so it did well really.

Love y'all many, and will be reporting back from lovely Rotterdam

   
    :cheer:     :cheer:       :cheer:

Great news and well done Cassandra!
... I am sure you are going to enjoy Rotterdam (I wish I could come with you ... )
and I send you my best wishes from Kristina.  :grouphug;

P.S.  Do you know the song by Jacques Brel - Dans Le Port d'Amsterdam ?
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cassandra
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When all else fails run in circles, shout loudly
« Reply #13 on: June 15, 2016, 09:20:47 AM »
Greetings from Rotterdam

     :waving;


All okay, gray, bit rainy, but Ecstatic to be here. Wedding tomorrow.

Rerun I hope the flow of 200 and me doing longer D will be enough for now. I'll find out Monday or Tuesday what the plan is

Love, Cas
« Last Edit: June 15, 2016, 09:25:34 AM by cassandra » Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #14 on: June 15, 2016, 06:42:44 PM »
Cas, Good luck with your issues. You will get it sorted out. We're wishing only the best for you! :thumbup;
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
cassandra
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When all else fails run in circles, shout loudly
« Reply #15 on: June 16, 2016, 01:50:07 PM »
Thanx Xplantdad. And the wedding was lovely.

Love, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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