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« on: June 06, 2016, 07:17:28 AM »

My name is Thomas Lehn and come from Germany. I am dialysispatient for 46 years.
I am married  and I live in Ingelheim near Mainz. I work as a system engineer for over 36 years in the LDI (Landesbetrieb Daten und Information) in Mainz. I'm on dialysis since 1970 and therefore I am the youngest man in the world who has a chronical kidney disease and lives on the longest of renal replacement therapy - the Hämodialysis. Since 1983 I dialyze at home with my wife.
I was never kidney transplanted.
Now, 46 years ago, when I was undergoing dialysis, the dialysis process for the former nurse was a complex and dangerous treatment. The nurses learned to finally deal with it new maschines. Similarly, the nursing staff for the difficult medical supervision was responsible.
Why am I telling you this? Training sessions did not exist! It was the pure reality!

 post moved to introductions by mod Cassandra

« Last Edit: June 06, 2016, 02:31:45 PM by cassandra » Logged
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« Reply #1 on: June 06, 2016, 08:00:50 AM »

46 years is quite a feat, ThomLehn.  I wish you many more years of record-breaking success--through dialysis or through transplant.  I hope most of us have such good luck too.

Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
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When all else fails run in circles, shout loudly

« Reply #2 on: June 06, 2016, 02:36:19 PM »

Welcome to the site ThomLehn


I'm well impressed, and your story gives me hope.

Keep well, Cas

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
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« Reply #3 on: June 07, 2016, 09:37:55 AM »

Thank You, All.
Here is my Website (only in German): http://www.thomas-lehn.de
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« Reply #4 on: June 10, 2016, 01:25:21 PM »

Hello ThomLehn and welcome to IHD.
To be quite honest, I can hardly imagine how very difficult dialysis must have been when you started over 46 years ago!!!
... I have seen your website and I agree with you that the "Organhandel" of poor people's organs to "paying customers" is quite despicable...
... You also write on your website that dialysis is kinder to the body than transplant... What makes you think that way?
Is a transplant not kinder to the body in the long run? ... And is the survival chance for kidney-transplantees not better?
What do you think?
Many thanks and best wishes from Kristina. :grouphug;


Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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Going through life tied to a chair!

« Reply #5 on: June 14, 2016, 03:56:11 AM »

WOW, Welcome, Welcome, Welcome... To IHD.  That is great.  So how old were you when you started? or How old are you now and I can do the math.  Next year will be 30 for me.  A lot of changes since 1987 but none in the last 10 years.

Glad you joined us.

Welcome - Rerun, Admin.     :welcomesign;

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Photo is Jenna - after Disneyland - 1988

« Reply #6 on: June 15, 2016, 01:30:00 PM »

 :welcomesign; :welcomesign; :welcomesign;

46 years! Amazing!


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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"Still crazy after all these years."

« Reply #7 on: June 15, 2016, 04:51:03 PM »

Congrats on 46 years of hemodialysis!

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Vt Big Rig
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« Reply #8 on: June 17, 2016, 10:28:09 AM »

Welcome to the site and CONGRATULATIONS on dialysis so long!

VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
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« Reply #9 on: June 17, 2016, 07:29:56 PM »

Welcome, ThomLehn! Your many years of experience will be very valuable to all of us here. Look forward to reading more posts from you! Thank you for sharing!

Husband has ESRD with Type I Diabetes -Insulin Dependent.
I was his carepartner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
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