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dialysisuser82
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« on: May 16, 2016, 03:10:43 PM »


  My journey so far on dialysis is more than 34 yrs. It is strange how I faintly remember as if it was a short while ago.  If someone asks how old I am all I could remember "34 yrs".

 The journey is short for some of us, a bit longer for others.  All pending on the missions that need to be accomplished.

 I thought this song- for moment- evokes my thought in general.

                         I close my eyes only for a moment, and the moment's gone
                         All my dreams pass before my eyes, a curiosity

                         Dust in the wind, all they are is dust in the wind

                        Same old song, just a drop of water in an endless sea
                        All we do crumbles to the ground, though we refuse to see

                        Now, don't hang on, nothing lasts forever but the earth and sky
                        It slips away, and all your money won't another minute buy

                             ---Dust in the wind, all we are is dust in the wind---
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PrimeTimer
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« Reply #1 on: May 16, 2016, 07:25:25 PM »

You "long termers" help to inspire people like my husband (the patient) and I (the care partner). We are only in our third year. Some days really suck. Other days, not so bad. It's still hard but gotten a little easier...don't know if I will EVER get to be the one in-charge of the TV remote! 

"I have not failed. I've just found 10,000 ways that won't work".
-Thomas Edison

"Against the wind. I'm still runnin' against the wind. I'm older now but still running against the wind".
-Bob Seger

"Takin' Care of Business. Every day".
-BTO

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Husband has ESRD with Type I Diabetes -Insulin Dependent.
I was his carepartner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
Rerun
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Going through life tied to a chair!

« Reply #2 on: May 16, 2016, 07:47:21 PM »

June 7, 2017 will be 30 years with renal failure.  I did have a break of 17 years with a transplant but that just is another form of renal therapy.  Yes, just a little boat bobbing in the ocean of life.
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Vt Big Rig
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« Reply #3 on: May 18, 2016, 05:11:58 AM »

I must agree with Prime Timer. I applaud and admire you "long timers" :clap; :clap;

I have been 13 months  ... a blink of the eye compared to many of you. Yet I often wonder what life was like before dialysis.

I just moved back closer to my son and grandchildren and it is strange to watch him adjust to the schedule we must keep and The "no I can't do something right now cause I am "hooked up"."

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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
Charlie B53
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« Reply #4 on: May 18, 2016, 10:36:44 AM »



My three years on PD doesn't even begin to count against the years so many of you have endured Hemo.

I can wait.  Hopefully a very long time.
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dialysisuser82
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« Reply #5 on: May 23, 2016, 02:59:01 PM »


   I have been thinking about lives of some missionaries Martyrs, one that touched me deeply and at such tender age of 28 yrs., St. Jean Louis Bonnard martyred May 1st 1852.

       A poem from Victor Hugo dedicated to  St. Jean-Louis Bonnard

« Ô saint prêtre ! grande âme ! oh! je tombe à genoux !
Jeune, il avait encor de longs jours parmi nous ;
Il n'en a pas compté le nombre ;
Il était à cet âge où le bonheur fleurit ;
Il a considéré la croix de Jésus-Christ
Toute rayonnante dans l'ombre.

Or il est loin de nous une autre humanité,
Qui ne le connaît point, et dans l'iniquité Rampe enchaînée,
et souffre et tombe.

Il s'est dit qu'il est bon d'éclairer dans leur nuit,
Ces peuples égarés loin du progrès qui luit,
Dont l'âme est couverte de voiles ;
Puis il s'en est allé dans les vents, dans les flots,
Vers les noirs chevalets et les sanglants billots,
Les yeux fixés sur les étoiles. »
           ---- À un martyr -----
:
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dialysisuser82
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« Reply #6 on: May 23, 2016, 03:09:36 PM »


 
 I have been thinking about lives of Missionaries Martyrs, the one that touched me most and at such tender age of 28 yrs., was  St. Jean Louis Bonnard  --martyred May 1st 1852.

         A Poem from Victor Hugo dedicated to Jean-Louis Bonnard:       
       
           « Ô saint prêtre ! grande âme ! oh! je tombe à genoux !
             Jeune, il avait encor de longs jours parmi nous ;
              Il n'en a pas compté le nombre ;
              Il était à cet âge où le bonheur fleurit ;
              Il a considéré la croix de Jésus-Christ
              Toute rayonnante dans l'ombre.

              Or il est loin de nous une autre humanité,
              Qui ne le connaît point, et dans l'iniquité Rampe enchaînée,
              et souffre et tombe.

             Il s'est dit qu'il est bon d'éclairer dans leur nuit,
             Ces peuples égarés loin du progrès qui luit,
             Dont l'âme est couverte de voiles ;
             Puis il s'en est allé dans les vents, dans les flots,
             Vers les noirs chevalets et les sanglants billots,
             Les yeux fixés sur les étoiles. »
         
                    ---- À un martyr -----

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cassandra
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When all else fails run in circles, shout loudly

« Reply #7 on: May 25, 2016, 10:58:35 AM »

Hi DU82 could you translate please?

  :angel;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
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