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Author Topic: Re-introduction  (Read 722 times)
Rainy
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« on: January 31, 2016, 08:46:56 AM »

Hi - I original became a member of this site because I was helping my brother with NxStage Home dialysis.  We did this for about 5 yrs.  He had been on in-center dialysis for 22 yrs.  Unfortunately he passed away in 3/14.  Back in 1987 I tried to donate a kidney to him, but ended up finding out that I also had a kidney problem.  This may have saved me all these yrs from having to start dialysis sooner rather than later as I was able to really watch my diet, BP etc closer than I would have otherwise.  My GFR is now down to 18, so I guess it won't be long before I'll have to start.  I was hoping to get a transplant before having to start, but I'm not counting on it.  I'm grateful for this site.  I've been able to find not only answers to some of my questions but also new treatment information.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: January 31, 2016, 01:53:04 PM »

Welcome again to the site Rainy

    :welcomesign;

I'm sorry your brother died and your GFR is dropping.

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Charlie B53
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« Reply #2 on: January 31, 2016, 07:37:12 PM »



Welcome back. Some of the names have changed.  We too have lost members, and it hurts every time.

I'm am so sorry to hear of your Brother.  This desease doesn't come with a lot of warning, and the severity with some is far worse than others.

That's one of the biggest problems.  We can't know enough, and are always looking to learn more.  Anything that will help each one bear the burden another day at a time.

I am hoping you find many answers in here.

I'm sure you know that you've only need but ask.

Take Care,

Charlie B53
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Vt Big Rig
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« Reply #3 on: February 01, 2016, 04:55:29 AM »

Welcome back to the site.

Hopefully some treatment options are better than what you recall with your brother. Sorry to hear of his passing

I wish you the best of luck.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
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