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jac719
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« on: October 05, 2015, 09:24:05 AM »

Hello,

My name is José and I am new to dialysis as of July 28th of this year.  Was quite a surprise since I had no idea that I had kidney disease.  I was fortunate enough to be linked up with NxStage, they have been wonderful.  Within two months, my wife and I have completed the training and I am doing home hemodialysis which has enabled me to keep my full time job.  I am open to any suggestions, tips or advice as how to deal with this life changing event.

Regards,
José
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Simon Dog
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« Reply #1 on: October 05, 2015, 09:55:20 AM »

Go nocturnal NxStage.
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Darthvadar
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« Reply #2 on: October 05, 2015, 03:13:46 PM »

Hello Jac...

 :welcomesign; to our community...

You'll find lots of caring, supportive people here...

Feel free to 'pick our brains'....

Darth... Moderator...
« Last Edit: October 07, 2015, 09:38:27 PM by kitkatz » Logged

Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
PrimeTimer
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« Reply #3 on: October 05, 2015, 07:32:50 PM »

Welcome, jac719. Best suggestion I can make is to say tape the phone number to Nxstage to your cycler. Their tech support people are available 24/7 and will become your best friends.   
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Rerun
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Going through life tied to a chair!

« Reply #4 on: October 06, 2015, 02:23:17 AM »

Hello and Welcome to IHD.  I am sorry you had to jump into this pool but we are here to help you get around.

Welcome - Rerun, Admin.

 :welcomesign;
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Vt Big Rig
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« Reply #5 on: October 06, 2015, 05:19:15 AM »

Welcome to the site.

I am also a Nx Stage user.

Sorry you have to join this land of needles, hoses, and chairs but should you have questions or concerns you are in the right place.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
Gerald Lively
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« Reply #6 on: October 08, 2015, 11:51:29 AM »

I would be interested in how you determined you had a health problem - that ended up with kidney troubles.   In my case, I just conked out and they wheeled me into the hospital.  Once there they discovered a myriad of problems.  I did escape, am no longer on dialysis.  I don't know if anyone else has ever escaped dialysis but there is hope.  Get tested now and then.
If you ever need any stupid non-medical and useless advice, look me up. 
I just hang around here for the hell of it.  I'm the house pet.  Arf!







Empathy. 
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


Human hopes and human creeds
have their roots in human needs.

                          Eugene Fitch Ware
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