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Author Topic: Newbie!  (Read 3234 times)
smartcookie
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LMSW

« on: September 24, 2015, 11:01:51 AM »

Hi, everyone!  I am a renal social worker and have been snooping around this site for awhile.  You all have helped shaped my practice and helped me understand more of what my patients face.  Thank you all for being so candid and I am looking forward to learning more here!  :waving;
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
Michael Murphy
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« Reply #1 on: September 24, 2015, 11:50:16 AM »

Welcome, as a dialysis patient I firmly believe the must under appreciated person in the center is the social worker.  From insurance problems to just plain problems they have been a wealth of information and help.  I am sure your advise to people on this site will be invaluable.
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smartcookie
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« Reply #2 on: September 24, 2015, 12:31:14 PM »

Thanks!
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
Razman
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« Reply #3 on: September 24, 2015, 02:21:15 PM »

It's great that you joined. Please stay in touch and give support.   :welcomesign;
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MooseMom
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« Reply #4 on: September 24, 2015, 02:44:32 PM »

Dear smartcookie,

I am very glad to see that you've become a member of our community.

We have had quite a few professionals who have joined.  We've had renal dieticians, techs, dialysis nurses and even nephrologists.  Sadly, they come for a short while, and then they leave.  As renal patients, we cannot "leave".  While I welcome you, I will be curious to see how long you stick around.  We would be very grateful to have a professional such as yourself become an active member on IHD.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
smartcookie
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« Reply #5 on: September 24, 2015, 04:43:55 PM »

Dear smartcookie,

I am very glad to see that you've become a member of our community.

We have had quite a few professionals who have joined.  We've had renal dieticians, techs, dialysis nurses and even nephrologists.  Sadly, they come for a short while, and then they leave.  As renal patients, we cannot "leave".  While I welcome you, I will be curious to see how long you stick around.  We would be very grateful to have a professional such as yourself become an active member on IHD.

Thanks! I have wanted to join for a while! I think other professionals did not stick around long before is because this site is for patients. It is hard to juggle the professional persona at work and then support patients after work. I am excited to learn from you all and hopefully give some helpful advice!
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
Zach
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"Still crazy after all these years."

« Reply #6 on: September 24, 2015, 08:01:14 PM »

Hi smartcookie,
It's good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Vt Big Rig
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« Reply #7 on: September 25, 2015, 04:30:26 AM »

Hello smart cookie.

Welcome to the site.

I often wonder why the site does not have more Dialysis professionals. In my mind; some companies would frown on this because of concerns in today's litigious society.

Dr O always had a disclaimer in his signature I think for this very reason. I hope you are comfortable enough to stay.

Your perspective on things would be very helpful.

Again Welcome. :) :welcomesign;
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
Darthvadar
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« Reply #8 on: September 25, 2015, 05:40:48 AM »

 :welcomesign; to our community...

Good to have you aboard... Members have had differing experiences with Social Workers over the years.., It's going to be good to hear from you..

Darth... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
MooseMom
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« Reply #9 on: September 25, 2015, 02:15:44 PM »


Thanks! I have wanted to join for a while! I think other professionals did not stick around long before is because this site is for patients. It is hard to juggle the professional persona at work and then support patients after work. I am excited to learn from you all and hopefully give some helpful advice!

Actually, if you read the home page, you will see that this site is for anyone and everyone that has anything to do with chronic kidney disease and especially with dialysis.  This site is NOT for patients only!!! 

Also, whenever there have been professionals on this site, we have never asked for their "support".  There are websites (like Dr. Agar's) where it is understood that while advice/explanations are requested and offered, IT IS ALWAYS RECOMMENDED THAT POSTERS LOOK TO THEIR OWN RENAL TEAM FOR MEDICAL ADVICE.  But on IHD, that is not the case.  Just as you find it valuable to see dialysis through the eyes of the patient, we find it valuable to have the opportunity to learn the limits to what we can expect from the different people on our team.

Unfortunately, past experiences have left many of us feeling that the professionals who have joined for a short time have left because they were uncomfortable with some home truths.  This may well be unfair of us, but no professional has stuck around long enough to disabuse us of these notions.

Anyway, I do hope you stay for a while!  Welcome!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
smartcookie
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« Reply #10 on: September 26, 2015, 11:17:05 AM »

Thanks, MooseMom!! I agree that dialysis professionals need support, as well. I can't imagine what dialysis patients go through on a daily basis. I have learned so much by just reading this board and am excited to learn even more by participating. This past work week was togh for me and made me realize that I needed a place to voice my feelings. Thanks so much for the warm welcome!  :thx;
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
MooseMom
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« Reply #11 on: September 27, 2015, 09:15:05 AM »

Smartcookie, my mom was on dialysis for 5 years.  She lived in Houston and had family located on both coasts and along the Gulf Coast (and me up here in the Upper Midwest), so she was determined to travel to see her family.  Spending time with all of us meant a great deal to her, and none of her trips would have been possible without the assistance of her social worker who managed all of the details to get her into dialysis clinics in various states.  A good social worker can truly make the difference between living more happily on dialysis and merely surviving from one session to the next.  A good social worker can keep the outside world accessible.  It is a job filled with a lot of responsibility, and such a job needs a person who is supportive as well as being well supported in their job.

So, if you want to vent some of your frustrations, we are here to listen just as we are here to listen to patients themselves, to their caregivers, to their families and to anyone else who may need it!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
renalwife
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« Reply #12 on: September 27, 2015, 06:50:34 PM »

So true.  I sway between stage 3 and 4.  I also have leukemia and a lung condition.  And I don't post very often, but read this forum nearly daily and have learned a lot.  I think IHD has helped keep my sanity!!!

So vent away.  Believe it or not, we know that S.W.'s are human.
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