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Axxerz
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« on: September 02, 2015, 11:25:16 AM »
Hi everyone I'm new to this forum. I dialyse at home every other day and live in the UK.
I've now been on dialysis just over 35 years with no break in that time. I had one failed transplant back in 1985  and am no longer on the transplant list.
I went through University while on dialysis and have always worked full time.
Thanks for letting me join :)
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SooMK
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« Reply #1 on: September 02, 2015, 04:27:21 PM »
Welcome Axxerz! You are an inspiration for your long life with dialysis.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
PrimeTimer
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« Reply #2 on: September 02, 2015, 06:49:35 PM »
Welcome, Axxerz! You've been at it for 35 years?! WOW! These days, a person is lucky if they get to keep the same job a few years without being laid off...

  :welcomesign;  Welcome to the site, no doubt you have much to contribute and teach to some of us underlings. 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: September 08, 2015, 03:31:12 PM »
Welcome to the site Axxerz

    :welcomesign;

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Darthvadar
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« Reply #4 on: September 08, 2015, 04:40:18 PM »
Hello, and  :welcomesign; to our community...

I'm a short hop across the Irish sea from you....

Hope to see you around loads!...

Darth.... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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