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Author Topic: You can provide input into the development of new devices for kidney patients  (Read 1523 times)
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"Still crazy after all these years."

« on: August 07, 2015, 11:19:46 AM »

A recent eMail from the National Kidney Foundation (U.S.):

Kidney Health Initiative (KHI)
Would you like to learn more about the U.S. Food and Drug Administration (FDA) and how new medical devices come available?

Understanding Patient Preferences is a way for industry, FDA, scientists and clinicians to match patients? opinions and choices with the approval of new medical devices. We want to hear directly from patients and their care partners about what works best for them.

Consider participating in a live webcast of an upcoming workshop hosted by the Kidney Health Initiative (KHI), titled “Understanding Patients? Preferences: Stimulating Medical Devices Development in Kidney Disease”.

Taking place on August 12-13, 2015 portions of the workshop will be streamed live so individuals can participate from home or work. This workshop will balance education with time for hearing directly from patients about their ideas. Participants are able to submit questions online and receive real time answers and feedback from the presenters.

Who is invited: patients, family members, care partners, scientists, doctors, nurses, technicians, and companies.

To learn more or register to participate in the webcast, please visit the KHI website:  http://www.asn-online.org/khi/patients.aspx?ID=3

If you have any questions regarding the workshop, its webcast or how to register, please contact KHI staff at KHI@asn-online.org.

KHI is a public-private partnership between the American Society of Nephrology (ASN) and the U.S Food and Drug Administration (FDA) established in 2012. KHI includes over 70 member organizations and companies that represent all major stakeholders in the field of kidney disease: patient and health professional organizations, pharmaceutical companies, device manufacturers, dialysis providers, research institutions, and federal agencies.

Kidney Health Initiative (KHI)
« Last Edit: August 07, 2015, 11:23:53 AM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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