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Author Topic: Improve Dialysis with Kidney Care Quality and Education Act  (Read 2148 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: April 03, 2007, 03:31:30 PM »

From the National Kidney Foundation

Improve Dialysis with Kidney Care Quality and Education Act

Over 335,000 Americans require dialysis at least 3 times per week to stay alive. Most of these people depend on Medicare to pay for treatments. Although dialysis has improved over the past decade, more can be done for people on dialysis.

Ask your Members of Congress to co-sponsor the Kidney Care Quality and Education Act (HR 1193 / S 691) to empower people affected by chronic kidney disease to make the best treatment choices for their situation and improve care for people on dialysis.

Send a message to the U.S. Congress! -- go to http://capwiz.com/kidney/issues/alert/?alertid=9582041&PROCESS=Take+Action

This bill would:

    * Establish an education program for patients before they reach kidney failure to empower them to plan ahead and make the best treatment choices for their situation. Classes would explain dialysis and transplant options, how to manage health conditions that accompany kidney disease, and coping with emotional and financial issues.
    * Set up a three-year pilot program to look at how to improve the dialysis patient experience, and set standards and use rewards for providing quality care.
    * Examine barriers to home dialysis therapy and ways to remove those barriers.
    * Create a national training standard for dialysis technicians to ensure quality care.

Your voice makes a difference.  If you are interested in taking part in the first of NKF’s e-advocacy action alerts please sign-up here http://capwiz.com/kidney/mlm/signup/?ignore_cookie=1
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."

« Reply #1 on: April 03, 2007, 09:26:50 PM »

The NKF leaves out a lot of information about the bill.  Why do you suppose that is?

Information is empowerment.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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