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Author Topic: Frank is getting a transplant!  (Read 3997 times)
frankswife
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« on: July 21, 2015, 03:42:26 PM »
Here we are at the hospital waiting for Frank's new kidney to get here. They told us that the donor tested positive for Epstein Barr and CMV. They say it's not really a problem that alit if people carry these viruses, but I'm freaking out. Anybody know anything about this?
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Deanne
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« Reply #1 on: July 21, 2015, 04:20:04 PM »
Congratulations! I can't wait to hear all's well after surgery.  :yahoo;

It sounds like about 80% of adults test positive for CMV, so if Frank already tests positive, it's a wash / doesn't matter. Possible issues come in if Frank tested negative for CMV. It'll mean he needs to be on an anti-viral medication for much longer, and he's at greater risk for experiencing effects of the CMV himself. I know some here have ended up with CMV post-transplant and they got pretty sick from it. They told me during my transplant evaluation that I tested negative. Luckily, so did my donor.

I don't know anything about Epstein Barr. I don't remember them ever telling me that either the donor nor I were tested for it.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
iolaire
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« Reply #2 on: July 21, 2015, 06:57:03 PM »
Good luck. I hope it all works out.  Try to let the stress from the wait go.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
MooseMom
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« Reply #3 on: July 27, 2015, 11:10:32 AM »
Any news? 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
PrimeTimer
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« Reply #4 on: July 27, 2015, 06:56:43 PM »
That is great news! It's always a good day to hear when someone gave and someone received! Best wishes! Please keep us posted!  :thumbup;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
frankswife
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« Reply #5 on: July 30, 2015, 07:43:08 PM »
The surgery went well and the kudney worked right out of the gate. Frank's home now. We just had his first clinic today. His Creatinine is 1.1! He looks and feels 100% better already. His incision is draining alot if what looks like water, which they tell us is normal. All in all, so far so good!
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"If we all abandon our posts, who then will stand?" St. Augustine
cassandra
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When all else fails run in circles, shout loudly
« Reply #6 on: July 31, 2015, 02:12:14 PM »
Fantastic news

     :yahoo;


Lots of love, and luck, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #7 on: July 31, 2015, 07:58:11 PM »
Congrats! Thanks for sharing the good news. Hope the success continues!
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Vt Big Rig
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« Reply #8 on: August 01, 2015, 06:26:35 AM »
Keep going Frank, and CONGRATULATIONS. :yahoo; :yahoo; :yahoo; :yahoo;
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
McKay
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« Reply #9 on: August 11, 2015, 09:50:38 PM »
Congrats, such GREAT news!  Keep plugging away, it is a complex journey but worth every second.  This is the most indescribably incredible experience of our lives - isn't it wonderful to have others to share with - who've been there!  I'm a wife/caregiver, too.  We are so blessed to be part of such wonder!
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Wife, RN/Caregiver to Bill:
Creeping Creatinine from 2000, age 50
Kidney biopsy: IgAN dx. 2006 age 56
Stage 5 2014, age 64
GFR 11 Preemptive Non Related Living Donor Transplant 01/06/15
Jean
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« Reply #10 on: August 12, 2015, 06:12:02 PM »
So happy for both of you!!! A new life starts now......................... :bow;
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One day at a time, thats all I can do.
SooMK
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« Reply #11 on: August 12, 2015, 08:08:57 PM »
Congrats!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
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