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Author Topic: Haven't been around for awhile  (Read 2674 times)
del
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del and willowtreewren meet
« on: July 08, 2015, 06:39:13 PM »
It has been a very difficult 7 months for us.  On December 10 hubby's mom passed away.  She had dementia and had been in a nursing home for over 4 years but it was still difficult to lose her.  Hubby's sister ( only the 2 of them in the family) got sick after Christmas.  She was feeling miserable with really bad headaches, tired and no appetite.  She lost 38 lbs in one month!!  She went to the doctor in March and had a CT scan done of her head.  She got the report on April 7 and she had cancer in bones in her head and neck.  After several more tests and a biopsy it was discovered that it had started in her lung and spread to her liver and bones.  At that point treatments weren't an option and the plan was to try to control the pain and make her as comfortable as possible.  She did not have one day after that pain free and on June 18th she passed away.  Hubby was still grieving his mom when all this happened.  Living just on the next street to her we were sort of the main caregivers along with her daughter in law.  She had one son who worked away from home and one 44 year old daughter who is developmentally delayed.  It has been and still is a very stressful time.  We are now dealing with her husband who was in total denial of her sickness.
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Don't take your organs to heaven.  Heaven knows we need them here.
Zach
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"Still crazy after all these years."
« Reply #1 on: July 08, 2015, 07:04:50 PM »
 :cuddle;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
kristina
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« Reply #2 on: July 09, 2015, 01:20:40 AM »
Hello Del,
 ... thinking of you and sending you my best wishes,
Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Vt Big Rig
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« Reply #3 on: July 09, 2015, 04:18:26 AM »
Sounds like a long 7 months, Del.

Prayers and good wished to you!
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
MooseMom
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« Reply #4 on: July 09, 2015, 08:39:03 AM »
I'm so sorry to hear about all of these challenges, del.  Sometimes life just sucks eggs.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #5 on: July 09, 2015, 09:04:18 AM »
We will try to bring some much-needed cheer!  :grouphug;

Lots of love to both of you!

 :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #6 on: July 09, 2015, 02:55:22 PM »
Love, and strength to you and your family Del


      :grouphug;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kitkatz
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« Reply #7 on: July 09, 2015, 03:33:44 PM »
Prayers to your family.   :cuddle;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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