I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
March 30, 2020, 03:51:50 AM

Login with username, password and session length
Search:     Advanced search
530046 Posts in 33366 Topics by 12373 Members
Latest Member: kbiel
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Home Dialysis (Moderator: Charlie B53)
| | |-+  Phosphorus Spike
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Phosphorus Spike  (Read 1725 times)
Whamo
Elite Member
*****
Offline Offline

Posts: 1028

« on: June 18, 2015, 08:51:26 AM »

I've been eating edible marijuana to sleep at night because my 10 hour dialysis routine keeps me awake.  It works like a charm, unfortunately, my phosphorus numbers spiked.
I did some searches and discovered others have had the same experience.  I didn't sleep at all last night because I stopped using it.  Does anyone else have
any experience with this?
Logged
Deanne
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1841


« Reply #1 on: June 18, 2015, 09:20:56 AM »

I'm post-TX, so I can't talk about phosphorus spikes, but what if you take extra binders with it, and/or use less? I used about a quarter-sized bite of edible cookies and it was enough to help me sleep.
Logged

Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Rerun
Administrator/Owner
Member for Life
*****
Offline Offline

Gender: Female
Posts: 12239


Going through life tied to a chair!

« Reply #2 on: June 18, 2015, 10:27:45 AM »

I would agree... take a binder or two.
Logged

Charlie B53
Global Moderator
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3440


« Reply #3 on: June 19, 2015, 05:50:48 AM »


Lots of common sense in here.

Take the binders.

I had a high phosphorus once.  Dr prescribed binders and I didn't take them as I knew it was a one-time thing caused by something I eat the night before the labs were drawn.  Sure enough next months labs I was back to the 'normal' range for me.  So now I have THREE big bottles as every once in a while the pharmacy must think I must be running out and send me another.  I've written my Primary Dr and told her I am NOT taking these and PLEASE make sure they do not send me any more.   The co-pay isn't that bad, but These bottles are simply going to sit on the shelf until they get thrown away.  I haven't found any place yet to donate un-used meds.  What a waste.  I could almost fill a grocery bag with un-used meds.  Many with unbroken seals,  a lot more partial bottles of discontinued meds.  It would be very neat to find an organization that would take these and USE them for people that otherwise could never afford or have any access to meds that they need.  That would sure beat trashing them.


Logged
iolaire
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1804


« Reply #4 on: June 19, 2015, 06:02:41 AM »

I've been eating edible marijuana to sleep
Don't they also offer it as an oil?  I wonder if using oil or a butter would have lower phosphorus since its less of the green part?  (Alternatively that might even more concentrate the phosphorus...)
Logged

Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Deanne
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1841


« Reply #5 on: June 19, 2015, 07:32:40 AM »


These bottles are simply going to sit on the shelf until they get thrown away.  I haven't found any place yet to donate un-used meds.  What a waste.  I could almost fill a grocery bag with un-used meds.  Many with unbroken seals,  a lot more partial bottles of discontinued meds.  It would be very neat to find an organization that would take these and USE them for people that otherwise could never afford or have any access to meds that they need.  That would sure beat trashing them.

I so agree with you! I also have a stash of unused meds. I don't want to throw them away because I know someone could use them. Not everyone has great insurance and some of these are exceptionally expensive. I'd rather give them to someone than throw them out, but it's illegal, so I'm reluctant to offer them up too freely. I tried sending someone locally a vague message based on something I saw online that told me he's on dialysis, but I'm sure he thought I was a spammer so he didn't respond.
Logged

Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!