I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
April 26, 2024, 09:55:02 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  Introduce Yourself
| | |-+  New and running		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: New and running  (Read 2019 times)
Vt Big Rig
Full Member
***
Offline Offline

Gender: Male
Posts: 491
« on: June 02, 2015, 06:36:28 AM »
Hello, my name is Joe. I was diagnosed with CKD about 30 months ago. We fought the "stay off the machine" battled for over two years and with the help of my wife we did pretty well. But three months ago I had a third incident of going to hospital for fluid overload and we finally decided to start dialysis. I had a fistula installed over a year ago.
We are doing home dialysis with a Next Stage machine. We had a great nurse trainer but we have had multiple issue with the fistula. I have had two fistula-grams and scheduled for a third surgery to "block branches". But my wife has become a master cannulator with sharps. I have said that if I knew how much better I would fell than I did; I would have started dialysis sooner.

Having said that I still have trouble with the idea that this is the rest of my life and even worse, that I have sentenced my wife to this routine also. She has been quite a trooper through all this and it is more than i saying that I have no idea what I would do without her.

This board has been helpful. I thank the community.
Logged
VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
iolaire
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2022
« Reply #1 on: June 02, 2015, 07:03:17 AM »
Welcome, I'm glad you found the board.  I hope that once you get settled into dialysis and are able to stay out of the hospital. 
Logged
Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Zach
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4820


"Still crazy after all these years."
« Reply #2 on: June 02, 2015, 07:19:00 AM »
Welcome to our community!
 :beer1;
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!
« Reply #3 on: June 02, 2015, 07:30:47 AM »
Hi Vt Big Rig, and welcome to IHD.  I'm so glad you found us.  I'm glad you are doing better and I'm glad you appreciate your caregiver.  If you ever feel she is overwhelmed a nice bunch of fresh flowers does wonders for the soul.  I know how you feel about this life sentence because that is what it is.  Unless you can get a transplant and get some of your life back.

Welcome - Rerun, Admin.   :welcomesign;
Logged
Simon Dog
Administrator/Owner
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3460
« Reply #4 on: June 02, 2015, 09:38:31 AM »
I had to have some branches tied off so my fistula would develop - it's been working nicely for a bit over a year with no hint of trouble.  Yet.
Logged
Michael Murphy
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2109
« Reply #5 on: June 02, 2015, 12:02:36 PM »
 :welcomesign; I glad you joined us.  The only advise I have is that if you think of this as a never ending battle it will depress you, I know it did me, however I now treat each week as the task and on Friday I am complete for the week and I am happy to be done.  Next week is next weeks problem. The other thing that helps me keep my sanity is as a in clinic patient I go 3 times a week and all told spend 18 hours a week on dialysis.  That still leaves 150 hours in the week to have a real life.    I am sure your wife is happier helping with your treatment then she would be having to bury you. 
Logged
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!