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Author Topic: So what have you been given for an Easter present?  (Read 5718 times)
Sugarlump
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10 years on and off dialysis
« on: April 05, 2015, 04:24:56 AM »
For all those unable to partake in chocolate (high potassium) eggs ...
what gift have you received instead?

I got a really wonderful bunch of flowers (all in white and cream) which look lovely on my hall table... Happy Easter   :flower;  :flower;  :flower;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: April 05, 2015, 05:02:37 AM »
I ordered myself lots of clearance cloth from lots of shops online. For our next holiday in Rotterdam (2 days) and in Portugal (14 days). Perfect timing as I was heading for a bit of a down period again.
Hubby and me don't do Easter anymore, but I'll see my own 'presents' as gifts, and will enjoy them as Easter gifts  :angel;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis
« Reply #2 on: April 05, 2015, 07:54:01 AM »
What are you going to make with the cloth?
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: April 05, 2015, 01:16:18 PM »
I'm hoping to make a mini skirt (pink and lined with a split at the back) and soft black stretchy cotten to enlarge a shirt I received for my birthday. (Now I keep telling people to NEVER buy me cloth, but ....)
Never done it before, but as my 'big' fistula arm doesn't fit in the sleeve   ;D.  And my Prednisolon  trunk isn't camouflaged enough, I want to sew a strip from the tip of the wrist all the way to the bottom of the shirt (at the side of the trunk, and the bottom of the sleeve, some kind of go-faster stripe) the plan is to make it a swing shirt.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis
« Reply #4 on: April 05, 2015, 01:32:27 PM »
Sounds very funky, I wish I could sew but a button is about my limit!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly
« Reply #5 on: April 05, 2015, 03:29:27 PM »
How come?
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
UkrainianTracksuit
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« Reply #6 on: April 05, 2015, 07:34:19 PM »
I received perfume, a blouse and a new rosary.  I would have much preferred the brunch every one seemed to enjoy though!  ::)  Orthodox Easter is next Sunday so maybe that side of the family will be more careful preparing a "me-friendly" brunch then! 

Hope it was a good holiday.
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Jean
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« Reply #7 on: April 06, 2015, 01:30:58 AM »
 I didn't get nuthin   :(
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One day at a time, thats all I can do.
Hemodoc
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« Reply #8 on: April 06, 2015, 11:51:15 AM »
Eternal salvation.
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Peter Laird, MD
www.hemodoc.info
Diagnosed with IgA nephropathy 1998
Incenter Dialysis starting 2-1-2007
Self Care in Center from 4-15-2008 to 6-2-2009
Started  Home Care with NxStage 6-2-2009 (Qb 370, FF 45%, 40L)

All clinical and treatment related issues discussed on this forum are for informational purposes only.  You must always secure your own medical teams approval for all treatment options before applying any discussions on this site to your own circumstances.
Jean
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« Reply #9 on: April 06, 2015, 11:53:07 AM »
Already had the salvation Hemodoc, but, thanks for the reminder.
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One day at a time, thats all I can do.
MooseMom
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« Reply #10 on: April 06, 2015, 12:56:54 PM »
We've never exchanged Easter presents in my family.  I didn't know this was a "thing".
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kristina
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« Reply #11 on: April 06, 2015, 02:58:58 PM »
Quote from: MooseMom on April 06, 2015, 12:56:54 PM
We've never exchanged Easter presents in my family.  I didn't know this was a "thing".

On the Continent is is mainly meant for children, that an "Easter-bunny" brings them little presents,
like wonderfully decorated and painted easter-eggs, which are usually presented in a green little Easter-nest...
... The last Tsar of Russia Nicholas II had jewelled Easter-eggs for his family produced by the House of Fabergé
... and in 2011 there was an exhibition at Buckingham Palase of Easter-eggs by the House of Fabergé
and I was very happy not to have missed this rare opportunity...
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Rerun
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« Reply #12 on: April 06, 2015, 04:30:10 PM »
Quote from: Hemodoc on April 06, 2015, 11:51:15 AM
Eternal salvation.

Amen

I went to "Journey To The Cross" up on Sullivan and 16th.  An outdoor experience going back in time 2015 years.  It was humbling. 

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MooseMom
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« Reply #13 on: April 07, 2015, 08:24:05 AM »
Kristina, we have the same tradition here in the US.  Children participate in Easter egg hunts, and most of the time these "eggs" are plastic and contain little gifts inside.  Once discovered, the children put them in their green "grass" lined Easter baskets.

I've never been aware, however, of any tradition in which adults get Easter gifts, but that doesn't mean that such a practice doesn't exist.

I attended an exhibition of Faberge eggs in the City back in the late 1980s, and it was spectacular!  It sure wasn't at the Palace, though!  Aren't they remarkable??
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
UkrainianTracksuit
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« Reply #14 on: April 07, 2015, 09:02:25 AM »
I highly suggest the Fabergé Museum in Shuvalov Palace in St. Petersburg.  Did you know Fabergé has come out with a new Pearl Egg?  I'll keep dreaming and drooling about it.  ::) :'( :embarassed:

I do have an egg pendant made by Fabergé so I like to pretend in my own little world I have an egg.  Yeah, I'll keep on dreaming here too.  :waiting;
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kristina
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« Reply #15 on: April 08, 2015, 03:16:17 AM »
Quote from: UkrainianTracksuit on April 07, 2015, 09:02:25 AM
I highly suggest the Fabergé Museum in Shuvalov Palace in St. Petersburg.  Did you know Fabergé has come out with a new Pearl Egg?  I'll keep dreaming and drooling about it.  ::) :'( :embarassed:

I do have an egg pendant made by Fabergé so I like to pretend in my own little world I have an egg.  Yeah, I'll keep on dreaming here too.  :waiting;

I am also dreaming ... Please tell me, is the Fabergé-Museum directly linked to the Hermitage?
I don't remember studying Fabergé-eggs at my visit ... but there again, it is such a huge museum (almost overwhelming)
with some of the most important paintings, but it still would be a pity if I would have missed seeing Fabergé's exquisite work there ...
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
UkrainianTracksuit
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« Reply #16 on: April 08, 2015, 07:26:21 AM »
Hi Kristina,

The new Fabergé Museum is separate from the Hermitage so your memory does serve you correctly if there was not much material on the topic there.  :)
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kristina
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« Reply #17 on: April 10, 2015, 10:49:26 AM »
Quote from: UkrainianTracksuit on April 08, 2015, 07:26:21 AM
Hi Kristina,

The new Fabergé Museum is separate from the Hermitage so your memory does serve you correctly if there was not much material on the topic there.  :)

Hello UkrainianTracksuit,
Thank you very much for the inspiring information, it gives me ideas where to travel,
when everything concerning my health is settled better again...
Best wishes from Kristina.

P.S. Saint Petersburg is one of the most artistic & fascinating cities I have seen ...
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Rerun
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Going through life tied to a chair!
« Reply #18 on: April 10, 2015, 11:27:41 AM »
A huge solid chocolate bunny!  Really?  I gave it to the neighbor kid.  She was thrilled.
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lainiepop
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« Reply #19 on: April 11, 2015, 12:13:08 PM »
Nothing but been eating the kids' eggs does that count lol. Oh actually hubby  got me my fave cadburys mini eggs which are so nice I can't stop eating them!! Do u get them in the US?

Best pressie for me tho was tx clinic appointment on Tues which showed everything so good and stable they dont wanna see me for 4 months (longest I've been between appointments since tx almost 3 years ago).

Not really an easter pressie, but hubby and I are off to barcelona Mon to fri , he booked it as a surprise for our 10th wedding anniversary (which is actually in the summer but he knew would be too hot for me then!) My parents are having the kids! So I'm looking forward to that but also a bit nervous as first time flying since the first the tx (know I'm being stupid, my doc told me to have fun and was telling me bout all the things to do there lol). Also hoping we can come home OK as the french air traffic controllers are planning strikes again!
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Riki
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« Reply #20 on: April 11, 2015, 11:34:57 PM »
My mom got me some Jolly Rancher jelly beans, some gummy bunnies and duckies, some Reese peanut butter eggs (my favorite) a Cadbury cream egg (they're smaller this year, I feel ripped off), and a few Frozen themeed Kinder eggs

Easter and Christmas are the only times of the year I eat chocolate... unless I'm in the US.. then I get a taste of Americone Dream ice cream..

I don't care for the Cadbury mini eggs... but then, I don't care for my chocolate to be tainted with a candy coating.. *L*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Sugarlump
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10 years on and off dialysis
« Reply #21 on: April 12, 2015, 01:13:46 AM »
We were out at a local country show yesterday and in the food tent they had two massive chocolate fountains (one white choc and one milk choc) and a huge array of strawberries and marshmallows
waiting to be dipped... Smell was wonderful... but I did not partake sadly  :waving;
Potassium and more potassium !!! cept the marshmallows...
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Riki
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« Reply #22 on: April 15, 2015, 11:29:00 PM »
I would have jsut eaten the marshmallows... *L*

I guess I'm just lucky that my levels are all in normal range, so I can have a little treat here and there and it doesn't really affect me... Also, binders have been my Godsend when it comes to phosphorus....
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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