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Hello.... I would like to introduce myself
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Topic: Hello.... I would like to introduce myself (Read 4703 times)
donnia
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me and my donor Joyce
Hello.... I would like to introduce myself
«
on:
March 29, 2007, 01:53:31 PM »
I am a 34 year old female. I was born with one kidney and it has lasted me this long... but now it is giving out. I am in the process of trying to get accepted to Baylor Medical Center's Transplant Program. I go back for my final tests on April 11th and I should know if they accept me by May 1st.
Just this last Tuesday (March 27th) I had AVG surgery to prepare for dialysis. They said it should be mature in 2 - 3 months hopefully. I am here for information, friends, and support. I am really freaked out about the whole dialysis thing! I can tell already that I hate dialysis.... is there any information or suggestions you can give to make it go easier? I am really scared about getting stuck 3 times a week... is there anything to make it not hurt so much? Anthing I should always remember to do before or after dialysis.... anything I should take with me???
Just wanted to add.... I am from Texas
Thanks so much for just being here!!!!
«
Last Edit: March 29, 2007, 09:57:43 PM by donnia
»
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
goofynina
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He is the love of my life......
Re: Hello.... I would like to introduce myself
«
Reply #1 on:
March 29, 2007, 02:01:35 PM »
Hi Donnia, Welcome to ihatedialysis.com. If it is friends and support you are looking for, you have come to right place. Not only will you have friends and support but you will get answers to just about anything you ask. If you read through the different threads i think you will get an idea of what questions to ask in which sections, such as General Discussion we ask about anything pertaining to dialysis. There is a search bar that you can also look for specific things as well. If you are having any trouble finding something, please do not hesitate to ask questions, post any comments and/or concerns of your own. We are a friendly group of people and have pretty much adopted each other as family. As far as what to take to the clinic, i would definetly take a blanket, reading material or if you have a mini dvd player and some movies, usually the clinics have T.V's and if your lucky they are working
I havent been on Hemo for almost a year now (i am on PD) but i am sure others who do go to the clinic can offer you a bit more advice. Sorry, i got carried away, this was supposed to be a Welcome only, sometimes i just dont know when to shut up
Welcome again....
Goofynina/Admin.
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....and i think to myself, what a wonderful world....
www.kidneyoogle.com
Sluff
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Re: Hello.... I would like to introduce myself
«
Reply #2 on:
March 29, 2007, 02:22:00 PM »
Welcome Donnia to IHD.
Thank you for introducing yourself, it is the best way for us to get to know you better. Whatever your reason for joining our family here at IHD, I hope you find everything you need, but most importantly I want you to feel comfortable to ask questions and come back and post often.
Here are some links to help you out.
Site rules:
http://ihatedialysis.com/forum/index.php?topic=540.0
Chat:
http://ihatedialysis.com/forum/chat/flashchat.php
The best search engine for kidney related issues:
http://www.kidneyoogle.com
Relationship advice:
http://www.renalromance.com
Sluff, Administrator
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kitkatz
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Re: Hello.... I would like to introduce myself
«
Reply #3 on:
March 29, 2007, 03:56:45 PM »
Welcome to the site. I love it when you ask questions, because we have all kinds of answers. There are discussions on what to take to dialysis and things to do. I would suggest a blanket, a snack, a cup of ice, headphones for the TV, a book or magazine to read. You will see as time goes on what you will need to bring. Welcome!
kitkatz,moderator
«
Last Edit: March 31, 2007, 10:10:55 AM by kitkatz
»
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
donnia
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me and my donor Joyce
Re: Hello.... I would like to introduce myself
«
Reply #4 on:
March 29, 2007, 04:03:01 PM »
Thanks for the welcome! I have been browsing and getting great information and ideas on what to take. Thanks again!
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
okarol
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Photo is Jenna - after Disneyland - 1988
Re: Hello.... I would like to introduce myself
«
Reply #5 on:
March 29, 2007, 05:54:37 PM »
Hi Donnia!
Nice to meet you!
Karol
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
boxman55
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Re: Hello.... I would like to introduce myself
«
Reply #6 on:
March 29, 2007, 06:02:28 PM »
Hi Donnia-Welcome to IHD. If you can afford them invest in a really good pair of noise cancelling headphones get a dvd player and sign up for Netflix. Not sure where your from but a nice warm blanket is a must. Boxma55
Logged
"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
rimbo74
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My older brother and me (I'm on the right)
Re: Hello.... I would like to introduce myself
«
Reply #7 on:
March 29, 2007, 06:33:05 PM »
Welcome Donnia, you have found a good place to come.
Is that Baylor in Dallas?
Logged
1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
lola
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I can fly!!!
Re: Hello.... I would like to introduce myself
«
Reply #8 on:
March 29, 2007, 06:36:42 PM »
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www.caringbridge.org/visit/ottomachado
Zach
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"Still crazy after all these years."
Re: Hello.... I would like to introduce myself
«
Reply #9 on:
March 29, 2007, 09:31:48 PM »
Real good to have you as part of the community!
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
donnia
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me and my donor Joyce
Re: Hello.... I would like to introduce myself
«
Reply #10 on:
March 29, 2007, 09:55:00 PM »
Quote from: rimbo74 on March 29, 2007, 06:33:05 PM
Welcome Donnia, you have found a good place to come.
Is that Baylor in Dallas?
Yes, Baylor in Dallas and Baylor Allsaints in Ft. Worth. Thanks for the welcome
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
anja
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Re: Hello.... I would like to introduce myself
«
Reply #11 on:
March 29, 2007, 10:12:03 PM »
Donnia to our community. Sorry you are having to deal with this at this time in your life, but we are here for you anytime.
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Joe Paul
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Re: Hello.... I would like to introduce myself
«
Reply #12 on:
March 30, 2007, 12:10:49 AM »
Welcome Donnia, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Wattle
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Re: Hello.... I would like to introduce myself
«
Reply #13 on:
March 30, 2007, 01:24:26 AM »
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
Re: Hello.... I would like to introduce myself
«
Reply #14 on:
March 30, 2007, 05:39:17 AM »
Logged
ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
RichardMEL
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Re: Hello.... I would like to introduce myself
«
Reply #15 on:
March 30, 2007, 05:48:01 AM »
Hey Donna - welcome!
First of all.. when you worry about pain just remember "Don't mess with texas!"
I think you may be surprised that really for the most part dialysis really doesn't hurt that much. Don't get me wrong.. the needles going in can and do, but you get used to that. The actual process of doing dialysis is more boring and frustrating than painful since when you're on the machine and everything's normal you really don't feel anything.
I definitely supoort the others suggestions to find distractions.. for me I use an ipod with good headphones... or a dvd player would work, or other things to distract you... because apart from the time out of your day it's really the boredom factor that is the hardest to deal with when you just have to sit there and not move for hours on end.
Anyway welcome to our site and try to not be too scared.. I am sure you will be fine!! And good luck with getting into the transplant program!!
Logged
3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Hawkeye
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Re: Hello.... I would like to introduce myself
«
Reply #16 on:
March 30, 2007, 06:41:49 AM »
to this wonderful site. I'm sure you will find all the info you could ever need here and if not ask and I'm sure we can answer your questions.
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It's not easy being green.
TxGuyTx
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Re: Hello.... I would like to introduce myself
«
Reply #17 on:
March 30, 2007, 06:45:52 AM »
Fellow Texan
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Laurie
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May 13, 2008
Re: Hello.... I would like to introduce myself
«
Reply #18 on:
March 30, 2007, 09:50:03 AM »
I am also from Texas and just finished my evaluation for Baylor's Transplant Program. If you have any questions, feel free to ask!
Logged
March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
rimbo74
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My older brother and me (I'm on the right)
Re: Hello.... I would like to introduce myself
«
Reply #19 on:
March 30, 2007, 01:08:01 PM »
I'm listed at both as well. Ask Laurie or myself any questions. With Baylor, be sure to call your coordinator a lot!!
Logged
1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
kimcanada
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Re: Hello.... I would like to introduce myself
«
Reply #20 on:
March 30, 2007, 01:58:15 PM »
to the club !
Kim
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carolyn77531
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Re: Hello.... I would like to introduce myself
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Reply #21 on:
March 30, 2007, 02:06:57 PM »
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YOU are stronger than you realize.
Wiser than you know.
What was once your life is now your legend.........
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Hello.... I would like to introduce myself
«
Reply #22 on:
March 30, 2007, 08:47:36 PM »
Welcome to our community! We are so glad to have you with us. This is a good place to come to examine the various options that you have. So look around, and ask questions when there is something you need to know. Also, please keep us posted. We want to know how you are doing and what you are going through. Remember that we are here for you.
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
donnia
Elite Member
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Posts: 1012
me and my donor Joyce
Re: Hello.... I would like to introduce myself
«
Reply #23 on:
March 30, 2007, 09:24:53 PM »
thanks again for the welcomes!!!
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
jedimaster
Full Member
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Posts: 353
Stainboy is....alive!!!
Re: Hello.... I would like to introduce myself
«
Reply #24 on:
March 31, 2007, 09:19:03 PM »
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