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Author Topic: Cryptococcal Meningitis  (Read 7904 times)
jeannea
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« Reply #25 on: March 03, 2015, 10:41:28 AM »
I think the doctors live to torture us. I hope they stop torturing you.
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Angiepkd
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« Reply #26 on: March 04, 2015, 05:07:05 AM »
Quote from: jeannea on March 03, 2015, 10:41:28 AM
I think the doctors live to torture us. I hope they stop torturing you.
The torture continues!  Heart doctor wants to do an ablation procedure on my heart.  I am scheduled for May 20th and have to say I am quite nervous about it.  It is out-patient and has a very low complication rate, but the idea of having a catheter placed in both femoral veins that go to my heart scares the heck out of me! 
I had to have labs drawn yesterday, and she had to stick me twice to get blood.  I am worried that the amount of destruction to my vascular system from the amphoteriacin B is going to make it impossible to go back on D if I have to.
Friday I get to see my gynecological oncologist (always a good time).
Today is my 1 year kidneyversary and I am going to spend it at transplant clinic.  Hopefully my labs are good or they will admit me again.  Even with all the craziness these past two months, I am still happy and thankful for my second chance at life.
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
MooseMom
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« Reply #27 on: March 04, 2015, 08:37:42 AM »
Oh geez, Angiepkd. My heart goes out to you.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
PrimeTimer
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« Reply #28 on: March 05, 2015, 12:08:31 AM »
Happy First Anniversary of your "bean" as they say! I don't know if this will come out right but, I read your posts because they are so informative, like getting an education (so thank you for sharing!) but also because people with such strong positive attitudes like yours is good for "the heart"! I haven't read the books but I've heard about the "Chicken Soup For The Soul" series and your attitude towards life as a transplant recipient is awe-inspiring. On one hand, you show you are human (but brave enough) to talk about your frustrations, pain and fear while on the other, you seem to think things through, finding ways to conquer things head-on. Hard to explain but I find that to be both very interesting AND uplifting. Best wishes for your next procedure...hope you will be able to relax and have some fun soon! You've been spending entirely too much time at hospitals!  ;D
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Angiepkd
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« Reply #29 on: March 09, 2015, 04:30:10 PM »
Quote from: PrimeTimer on March 05, 2015, 12:08:31 AM
Happy First Anniversary of your "bean" as they say! I don't know if this will come out right but, I read your posts because they are so informative, like getting an education (so thank you for sharing!) but also because people with such strong positive attitudes like yours is good for "the heart"! I haven't read the books but I've heard about the "Chicken Soup For The Soul" series and your attitude towards life as a transplant recipient is awe-inspiring. On one hand, you show you are human (but brave enough) to talk about your frustrations, pain and fear while on the other, you seem to think things through, finding ways to conquer things head-on. Hard to explain but I find that to be both very interesting AND uplifting. Best wishes for your next procedure...hope you will be able to relax and have some fun soon! You've been spending entirely too much time at hospitals!  ;D
Thank you PrimeTimer!  I always try to look at the bright side of things. I have it much easier than a lot of others, so I try to get all my frustrations out and then move on.  I have been through a lot, and this is just another bump in the road.  Thanks again for your kind words!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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