I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
April 25, 2024, 12:34:47 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  Introduce Yourself
| | |-+  Hello Everyone!		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Hello Everyone!  (Read 2735 times)
BlueRoses100
Newbie
*
Offline Offline

Posts: 2
« on: January 12, 2015, 12:37:11 PM »

Hello from Bristol in the UK!
Just a quick intro - I've been lurking on here for a while and thought it was time to register.  My mum has been on hemo dialysis for ESRD due to diabetes for 7 years and I am one of her carers. She has a plethora of other problems including blindness and severely reduced mobility. She eats very little and feels nauseous pretty much all the time. She said to me today 'i don't want to live like this anymore' and, although I understand that her quality of life is clearly awful, I'm heartbroken to think we are already at the stage when this must be discussed seriously.  :'(
« Last Edit: January 12, 2015, 12:51:59 PM by BlueRoses100 » Logged
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #1 on: January 12, 2015, 01:03:03 PM »
I'm so sorry for both you and your mum.  I can understand why she would not want to continue to live her life in this way.  I am pretty sure that none of us would relish that sort of life.
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
BlueRoses100
Newbie
*
Offline Offline

Posts: 2
« Reply #2 on: January 12, 2015, 01:18:09 PM »
Thank you MooseMom. I knew this day would come and I don't blame her for wanting to stop either. I have no idea what the next steps would be - mtg with her doctor I suppose? I'm really struggling as I have two sisters much younger than myself that I need to stay strong for, and a husband and 3 year old son too. I realise that there is not much anyone can say to help but just writing it out helps. x
Logged
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!
« Reply #3 on: January 13, 2015, 03:42:00 AM »
I wonder if a little "more" time on the machine would make her feel better.  I know it sounds horrifying but really... more is better.  It cleans the blood better and pretty soon you have some energy that you thought was lost.  Just a thought.

Rerun, Admin.   :welcomesign;
Logged
iolaire
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2022
« Reply #4 on: January 13, 2015, 05:33:13 AM »
Welcome BlueRoses100, one of the most important services of a site like this is to allow you someone to talk to and vent/share ideas with during your difficult journey.
Logged
Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Darthvadar
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2815
« Reply #5 on: January 26, 2015, 12:30:53 PM »
 :welcomesign; BlueRoses...

I too cared for my mum, so I 'get it'... Visit, and post often....

Feel free to take advantage of our amassed expertise....

God bless...

Darth... Moderator...
Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cassandra
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #6 on: January 29, 2015, 01:13:13 PM »
Welcome to the site BleuRoses100, maybe the talking about it, and discussing it, will just give your mum some 'relief' too.

Lots of love, and strength to all of you, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!